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Read user comments about the side effects, benefits, and effectiveness of Benlysta IV.

Overall User Ratings

31 Total User Reviews

User Reviews

«Previous 6-10 of 31 Next»
Condition: Systemic Lupus Erythematosus
11/3/2013 10:03:54 PM

Reviewer: Beljart, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 4

Comment:
I have been taking Benlysta for 9 months and it has proven to be a great treatment for keeping lupus managed. Finally, after 7 years, I have some relief. The inflammation surrounding my heart and lungs is finally under control. Also, I am down to 5 mg of prednisone every other day and my doctor and I have not talked about lowering the plaquenil yet. I also take calcium d glucarate (500mg) and the ... Show Full Comment

Condition: Systemic Lupus Erythematosus
8/12/2013 7:15:58 PM

Reviewer: Wildaisy, 45-54 on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
It has made my quality of my life, my families lives as well so much better, I was on oxygen and now I am not. I have had 10 infusions now, I did however have a reaction on the second or the third (can't remember) the IV was hooked up onto my left arm and my bicep muscle on the left arm swelled and tightened right up very tight. So now it takes me almost 4 hours to endure the infusion instead ... Show Full Comment

Condition: Systemic Lupus Erythematosus
7/17/2013 10:58:36 AM

Reviewer:

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 3

Comment:
I have had 2 infusion treatments of Benlysta. After my first infusion, I ended up developing a skin rash. Initially it was thought to be a drug reaction, though it was later determined that it was a lupus reaction from too much sun. My total treatment time in the office is usually around 2 hours total. I have not had any side affects from the medicine other then feeling very tired for about 24 hou ... Show Full Comment

Condition: Systemic Lupus Erythematosus
7/2/2013 5:25:38 AM

Reviewer: Chelle, 45-54 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 4

Comment:
I have had 4 infusions so far. Already see improvement in energy level and edema. For a few days after the infusion I have headache, fatigue and no appetite. My total infusion time is about 4 hours but I have very stubborn veins which is always a problem but considering a port. Very happy so far with this medication.

Condition: Systemic Lupus Erythematosus
5/26/2013 12:01:36 AM

Reviewer: Jay, 45-54 Male on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 3

Comment:
with in a month of 1st infusion developed ringing in the ears- for the last 3 months develop blood blisters on hands that dry and peel. Feel horrible for about a week after infusion. Off prednisone and sulfazaline (sp) Eased joint pain but has not done anything for the fatigue, brain fog, or chronic headaches.

«Previous 6-10 of 31 Next»

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IMPORTANT: About This Section and Other User-Generated Content on WebMD

The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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