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    Read user comments about the side effects, benefits, and effectiveness of Benlysta intravenous.

    Overall User Ratings

    40 Total User Reviews

    User Reviews

    «Previous 6-10 of 40 Next»
    Condition: Systemic Lupus Erythematosus
    9/17/2015 10:35:46 AM

    Reviewer: Finallygfree, 45-54 Female on Treatment for 2 to less than 5 years (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 4

    Comment:
    I have been on Benlysta infusions since 2012 and diagnosed with SLE well before that with many complications from it. This drug has given me so much hope I was having 60 grand mal seizures a year due to my lupus and this drug along with some seizure medicine has stopped them where no seizure medicine was- my only wish is that it would last the full month I get joint pain after 3 weeks and I am qui ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    5/4/2015 11:21:49 AM

    Reviewer: TJ, 35-44 Female (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 4

    Satisfaction

    Current Rating: 5

    Comment:
    My lupus was barely manageable before starting this drug. It has been over a year now and I have more energy and less flares. Down side is a week before my scheduled treatment, I start to feel a flare coming on. I also went 2 months without getting a treatment and ended up in the hospital due to flaring so badly. Over all I would recommend this to any patient suffering from SLE Lupus.

    Condition: Systemic Lupus Erythematosus
    2/10/2015 7:21:55 AM

    Reviewer: Denny, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 3

    Satisfaction

    Current Rating: 4

    Comment:
    I have been on Benlysta for about 8 months and was diagnosed with SLE in 2010. For the last 6 mos., I generally have 1-2 bad days, with fever, nausea, either insomnia or extremely tired, and feeling weak; however, by the 3rd day, my energy level is back to the normal. However, around month 4, I noticed that about a week before my next infusion, Pain increases, joints hurt, like my body knows it is ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    10/25/2014 4:17:55 AM

    Reviewer: Beachcats, Female on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 3

    Ease of Use

    Current Rating: 3

    Satisfaction

    Current Rating: 2

    Comment:
    I was one of the first patients in the United States to take Benlysta in June 2011. I had to slow the infusions down to three hours instead of one and half hours. I experienced nausea and an mild sort of asphasia ( a sort of muddled thinking) and a headache. I was also tired after the infusions. Each time I had an infusion (6 total) my temperature would rise about a degree and I felt discomfor ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    8/24/2014 3:52:33 AM

    Reviewer: TonyaRash, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 5

    Comment:
    I was diagnosed with SLE and DLE 25 years ago and just started Benlysta May. My flairs have stopped, but I am having other problems since taking it. i have hot flashes that my Rummy says are allergic reaction. I get high fevers, start to sweat profusely, sometimes I have trouble breathing, and I have to lay down. These are the worst the first week to week and a half after my treatment and the week ... Show Full Comment

    «Previous 6-10 of 40 Next»

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