Skip to content

    Read user comments about the side effects, benefits, and effectiveness of Benlysta intravenous.

    Overall User Ratings

    43 Total User Reviews

    User Reviews

    «Previous 16-20 of 43 Next»
    Condition: Systemic Lupus Erythematosus
    12/16/2013 6:37:48 PM

    Reviewer: LeahMarie, 35-44 Female on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 5

    Comment:
    I was diagnosed with SLE 20 years ago and have never been in "remission" since. I have had times that were worse than others with a SIGNIFICNT flare every 10 years- on the nose. The mix of Cellcept, methotrexate, steriods, Plaquinil and a variety of other juicy meds have lead me to live a relatively normal life, barring the 10-year flares. This last flare was by far the worst with b ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    11/16/2013 12:23:48 PM

    Reviewer: calliegirl5, 55-64 Female on Treatment for 5 to less than 10 years (Patient)

    Effectiveness

    Current Rating: 3

    Ease of Use

    Current Rating: 3

    Satisfaction

    Current Rating: 3

    Comment:
    I have been on Benlysta infusions for 6 years. I was in the phase 3 trial of Benslyta. I would say the only benefit I felt from this drug was I had more enery. It didn't help me with pain at all. I would say starting on my 5th year of infusions, I no longer was seeing any improvement with it. It no longer gave me an energy boost. I have decided to go off Benlysta and see if my lupus gets ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    11/3/2013 10:03:54 PM

    Reviewer: Beljart, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 4

    Comment:
    I have been taking Benlysta for 9 months and it has proven to be a great treatment for keeping lupus managed. Finally, after 7 years, I have some relief. The inflammation surrounding my heart and lungs is finally under control. Also, I am down to 5 mg of prednisone every other day and my doctor and I have not talked about lowering the plaquenil yet. I also take calcium d glucarate (500mg) and the ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    8/12/2013 7:15:58 PM

    Reviewer: Wildaisy, 45-54 on Treatment for 6 months to less than 1 year (Patient)

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 4

    Satisfaction

    Current Rating: 4

    Comment:
    It has made my quality of my life, my families lives as well so much better, I was on oxygen and now I am not. I have had 10 infusions now, I did however have a reaction on the second or the third (can't remember) the IV was hooked up onto my left arm and my bicep muscle on the left arm swelled and tightened right up very tight. So now it takes me almost 4 hours to endure the infusion instead ... Show Full Comment

    Condition: Systemic Lupus Erythematosus
    7/17/2013 10:58:36 AM

    Reviewer:

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 4

    Satisfaction

    Current Rating: 3

    Comment:
    I have had 2 infusion treatments of Benlysta. After my first infusion, I ended up developing a skin rash. Initially it was thought to be a drug reaction, though it was later determined that it was a lupus reaction from too much sun. My total treatment time in the office is usually around 2 hours total. I have not had any side affects from the medicine other then feeling very tired for about 24 hou ... Show Full Comment

    «Previous 16-20 of 43 Next»

    Ask the pharmacist

    Questions about medications? Get expert answers by video or live chat about allergies, pregnancy, sleep, and more.
    See the Ask the Pharmacist event schedule.

    Ask a Question

    Popular Slideshows & Tools on WebMD

    disciplining a boy
    Types, symptoms, causes.
    fruit drinks
    Eat these to think better.
    embarrassed woman
    Do you feel guilty after eating?
    diabetes supply kit
    Pack and prepare.
    Balding man in mirror
    Treatments & solutions.
    birth control pills
    Which kind is right for you?
    Remember your finger
    Are you getting more forgetful?
    sticky notes on face
    10 tips to clear your brain fog.
    Close up of eye
    12 reasons you're distracted.
    woman biting a big ice cube
    Habits that wreck your teeth.
    apple slices with peanut butter
    What goes best with workouts?
    Pink badge on woman chest to support breat cancer
    Myths and facts.

    Newsletters

    Subscribe to free WebMD newsletters.

    • WebMD Daily

      WebMD Daily

      Subscribe to the WebMD Daily, and you'll get today's top health news and trending topics, and the latest and best information from WebMD.

    • Men's Health

      Men's Health

      Subscribe to the Men's Health newsletter for the latest on disease prevention, fitness, sex, nutrition, and more from WebMD.

    • Women's Health

      Women's Health

      Subscribe to the Women's Health newsletter for the latest on disease prevention, fitness, sex, diet, anti-aging, and more from WebMD.

    By clicking Submit, I agree to the WebMD Terms & Conditions & Privacy Policy and understand that I may opt out of WebMD subscriptions at any time.

    WebMD the app

    Get trusted health information. Whenever. Wherever... with your iPhone, iPad or Android.

    Find Out More
    IMPORTANT: About This Section and Other User-Generated Content on WebMD

    The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

    Do not consider WebMD User-generated content as medical advice. Never delay or disregard seeking professional medical advice from your doctor or other qualified healthcare provider because of something you have read on WebMD. You should always speak with your doctor before you start, stop, or change any prescribed part of your care plan or treatment. WebMD understands that reading individual, real-life experiences can be a helpful resource but it is never a substitute for professional medical advice, diagnosis, or treatment from a qualified health care provider. If you think you may have a medical emergency, call your doctor or dial 911 immediately.