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Read user comments about the side effects, benefits, and effectiveness of Benlysta IV.

Overall User Ratings

30 Total User Reviews

User Reviews

1-5 of 30 Next»
Condition: Systemic Lupus Erythematosus
6/19/2014 2:24:35 PM

Reviewer: dwhaley, 55-64 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
For 10 years I weighed a mere 88 pounds. After taking Benlysta I have gained 20 pounds--without any change in my diet. Benlysta doesn't "cure" all my symptoms--I continue to require steroid injections in my joints and taking plaquenil. But I would say that Benlysta did, in fact, change my life for the better. I was diagnosed with SLE 25 years ago and have been treated with plaque ... Show Full Comment

Condition: Systemic Lupus Erythematosus
3/25/2014 3:56:01 PM

Reviewer: Victoria F, 45-54 Female on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 1

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 1

Comment:
The facility administering the benlysta was excellent. However, after an yr and a half I found absolutely. I change except for being more susceptible to infection.

Condition: Systemic Lupus Erythematosus
12/16/2013 6:37:48 PM

Reviewer: LeahMarie, 35-44 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
I was diagnosed with SLE 20 years ago and have never been in "remission" since. I have had times that were worse than others with a SIGNIFICNT flare every 10 years- on the nose. The mix of Cellcept, methotrexate, steriods, Plaquinil and a variety of other juicy meds have lead me to live a relatively normal life, barring the 10-year flares. This last flare was by far the worst with b ... Show Full Comment

Condition: Systemic Lupus Erythematosus
11/16/2013 12:23:48 PM

Reviewer: calliegirl5, 55-64 Female on Treatment for 5 to less than 10 years (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 3

Comment:
I have been on Benlysta infusions for 6 years. I was in the phase 3 trial of Benslyta. I would say the only benefit I felt from this drug was I had more enery. It didn't help me with pain at all. I would say starting on my 5th year of infusions, I no longer was seeing any improvement with it. It no longer gave me an energy boost. I have decided to go off Benlysta and see if my lupus gets ... Show Full Comment

Condition: Systemic Lupus Erythematosus
11/3/2013 10:03:54 PM

Reviewer: Beljart, 35-44 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 4

Comment:
I have been taking Benlysta for 9 months and it has proven to be a great treatment for keeping lupus managed. Finally, after 7 years, I have some relief. The inflammation surrounding my heart and lungs is finally under control. Also, I am down to 5 mg of prednisone every other day and my doctor and I have not talked about lowering the plaquenil yet. I also take calcium d glucarate (500mg) and the ... Show Full Comment

1-5 of 30 Next»
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The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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