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Read user comments about the side effects, benefits, and effectiveness of Benlysta IV.

Overall User Ratings

32 Total User Reviews

User Reviews

1-5 of 32 Next»
Condition: Systemic Lupus Erythematosus
10/25/2014 4:17:55 AM

Reviewer: Beachcats, Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 2

Comment:
I was one of the first patients in the United States to take Benlysta in June 2011. I had to slow the infusions down to three hours instead of one and half hours. I experienced nausea and an mild sort of asphasia ( a sort of muddled thinking) and a headache. I was also tired after the infusions. Each time I had an infusion (6 total) my temperature would rise about a degree and I felt discomfor ... Show Full Comment

Condition: Systemic Lupus Erythematosus
8/24/2014 3:52:33 AM

Reviewer: TonyaRash, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
I was diagnosed with SLE and DLE 25 years ago and just started Benlysta May. My flairs have stopped, but I am having other problems since taking it. i have hot flashes that my Rummy says are allergic reaction. I get high fevers, start to sweat profusely, sometimes I have trouble breathing, and I have to lay down. These are the worst the first week to week and a half after my treatment and the week ... Show Full Comment

Condition: Systemic Lupus Erythematosus
6/19/2014 2:24:35 PM

Reviewer: dwhaley, 55-64 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
For 10 years I weighed a mere 88 pounds. After taking Benlysta I have gained 20 pounds--without any change in my diet. Benlysta doesn't "cure" all my symptoms--I continue to require steroid injections in my joints and taking plaquenil. But I would say that Benlysta did, in fact, change my life for the better. I was diagnosed with SLE 25 years ago and have been treated with plaque ... Show Full Comment

Condition: Systemic Lupus Erythematosus
3/25/2014 3:56:01 PM

Reviewer: Victoria F, 45-54 Female on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 1

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 1

Comment:
The facility administering the benlysta was excellent. However, after an yr and a half I found absolutely. I change except for being more susceptible to infection.

Condition: Systemic Lupus Erythematosus
12/16/2013 6:37:48 PM

Reviewer: LeahMarie, 35-44 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
I was diagnosed with SLE 20 years ago and have never been in "remission" since. I have had times that were worse than others with a SIGNIFICNT flare every 10 years- on the nose. The mix of Cellcept, methotrexate, steriods, Plaquinil and a variety of other juicy meds have lead me to live a relatively normal life, barring the 10-year flares. This last flare was by far the worst with b ... Show Full Comment

1-5 of 32 Next»

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IMPORTANT: About This Section and Other User-Generated Content on WebMD

The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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