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Read user comments about the side effects, benefits, and effectiveness of Temodar Oral.

Overall User Ratings

52 Total User Reviews

User Reviews

1-5 of 31 Next»
Condition: Malignant Brain Tumor Glioblastoma
12/28/2013 9:22:29 AM

Reviewer: Cassie, 75 or over Male on Treatment for 1 to 6 months (Caregiver)

Effectiveness

Current Rating: 1

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 1

Comment:
My husband had surgery in August 2013 and had 90% of the tumor removed. Because of other unrelated medical issues, he didn't start the treatment until 6 weeks after surgery. He had 37 radiation treatments, 5 days/week and during that same period he took 160 mg of temodar 7 days/week. Towards the end of the treatment he became more and more confused, disoriented, restless, anxious and has insom ... Show Full Comment

Condition: Malignant Brain Tumor Glioblastoma
8/30/2013 11:25:05 PM

Reviewer: Caroline, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 5

Comment:
Diagnosed with GBM grade 4 in 1/13, had immediate surgery with full excision of tumor. Completed 6 weeks of radiation concurrent with 42 days straight of temodar. Now on monthly cycles as described by others in this post, taking the highest dose for my height and weight. So far, so good. MRIs show no recurrent tumor, only side effects have been fatigue and constipation. I will gladly put up with t ... Show Full Comment

Condition: Malignant Brain Tumor Glioblastoma
6/25/2013 12:12:57 PM

Reviewer: life is good , 55-64 Female on Treatment for less than 1 month (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 4

Comment:
i was diagnosed sept 2011 with stage 4 glioblastoma and they treated me immediately with radiation and chemo. i was told 4-12 months for my survival rate. however, the tumour has just reappeared so now back on the treatments again. hopefully it will give me another couple of years.

Condition: Malignant Brain Tumor Glioblastoma
5/31/2013 9:53:29 PM

Reviewer: Cornishcough, 45-54 Male on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
Tumor found last weekend of January 2013, operated he following Tuesday, 7cm x 5cm x 3.5cm. Pathology determined it was GBM4. Have completed Phase I after surgery, 42 days on,with radiation for 34 days at the same time. Lost about 2/3rds of my hair in beaming areas of scalp. Had 1 month off. Am now on Phase II, 5 days on 23 days off, every month. No real problems experienced other than occasional ... Show Full Comment

Condition: Malignant Brain Tumor Glioblastoma
4/16/2013 9:37:10 AM

Reviewer: RLR, 55-64 Male on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
Diagnosed with GBM4 on 12/15/2008 surgery on 1/13/2009 to remove 7.5cm tumor.I also had 6 gliodel wafers at time of surgery. Started on Temodar about 1/19/09 and 30 treatments of radiation about the same time.Have now been on 250 mg of Temodar 5 days on 3 weeks off for 4 years and 3 months as of 4/16/13. Last 3 MRI's have came back with no sign of the cancer!!Biggest problem is fatigue, I cons ... Show Full Comment

1-5 of 31 Next»
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The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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