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    Read user comments about the side effects, benefits, and effectiveness of Rapamune oral.

    Overall User Ratings

    35 Total User Reviews

    User Reviews

    1-5 of 22 Next»
    Condition: Prevent Kidney Transplant Rejection
    8/22/2014 6:36:36 PM

    Reviewer: NJ, 55-64 Female on Treatment for 1 to 6 months (Patient)

    Effectiveness

    Current Rating: 1

    Ease of Use

    Current Rating: 1

    Satisfaction

    Current Rating: 1

    Comment:
    Having to mix it with juice was very inconvenient and it sent my cholesterol to over 600!

    Condition: Prevent Kidney Transplant Rejection
    6/2/2013 12:31:36 PM

    Reviewer: 45-54 Female (Patient)

    Effectiveness

    Current Rating: 1

    Ease of Use

    Current Rating: 4

    Satisfaction

    Current Rating: 1

    Comment:
    Rapamune is very dangerous especially for liver patients. if you dont believe me ask your doctor. This drug can and will kill you. I am kidney transplant patient 19 years. The Rapamune which I was on caused VENO OCCLUSIVE DISEASE and PORTAL HYPERTENSION, tiny veins in the liver are blocked causing ascites. I need paracentesis weekly to remove fluid from my abdomen, 2.5 to 2.8L every procedure. No ... Show Full Comment

    Condition: Prevent Kidney Transplant Rejection
    2/20/2013 8:48:46 PM

    Reviewer: 45-54 Female on Treatment for 2 to less than 5 years (Patient)

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 4

    Satisfaction

    Current Rating: 1

    Comment:
    I had my transplant in the fall of 2007, unknown donor, at first I was on myfortic and prograf. I was switched from the myfortic to rapamune in 2009, at first I was doing well, had very little side effects and felt well, however by the summer of 2010 I had developed lymphodemia in my right arm, for no known reason. I've read that this is a rare side effect from the rapapmune and I'm hopin ... Show Full Comment

    Condition: Prevent Kidney Transplant Rejection
    7/23/2012 6:40:45 AM

    Reviewer: Junbug, 35-44 Male on Treatment for 5 to less than 10 years (Patient)

    Effectiveness

    Current Rating: 4

    Ease of Use

    Current Rating: 4

    Satisfaction

    Current Rating: 3

    Comment:
    I received a kidney transplant in 2006 from my brother; 5 of 6 marker match. I was initially on Prograf but had problems. Doctors said it restricted my veins/arteries. I was switched to Rapamune and thought I was doing well until reading the contradictions listed here. I have had trouble with acne and sleeping for years and recently I started swelling in my feet and legs. I also suffer with neu ... Show Full Comment

    Condition: Prevent Kidney Transplant Rejection
    2/22/2012 4:20:57 PM

    Reviewer: Dede, 35-44 Female on Treatment for 10 years or more (Patient)

    Effectiveness

    Current Rating: 5

    Ease of Use

    Current Rating: 5

    Satisfaction

    Current Rating: 3

    Comment:
    I had a kidney transplant 19 years ago... received it from my brother. I've been on Rapamune for 10 years with very little side effects. I just hate that now my cholesterol is high and I have to take Zetia everyday.

    1-5 of 22 Next»

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