Reviewer: 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I had my transplant in the fall of 2007, unknown donor, at first I was on myfortic and prograf. I was switched from the myfortic to rapamune in 2009, at first I was doing well, had very little side effects and felt well, however by the summer of 2010 I had developed lymphodemia in my right arm, for no known reason. I've read that this is a rare side effect from the rapapmune and I'm hoping to be ... Show Full Comment

Comment:
I had my transplant in the fall of 2007, unknown donor, at first I was on myfortic and prograf. I was switched from the myfortic to rapamune in 2009, at first I was doing well, had very little side effects and felt well, however by the summer of 2010 I had developed lymphodemia in my right arm, for no known reason. I've read that this is a rare side effect from the rapapmune and I'm hoping to be taken off it soon before the lymphodemia gets worse.
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Reviewer: Junbug, 35-44 Male on Treatment for 5 to less than 10 years (Patient)

Comment:
I received a kidney transplant in 2006 from my brother; 5 of 6 marker match. I was initially on Prograf but had problems. Doctors said it restricted my veins/arteries. I was switched to Rapamune and thought I was doing well until reading the contradictions listed here. I have had trouble with acne and sleeping for years and recently I started swelling in my feet and legs. I also suffer with neu ... Show Full Comment

Comment:
I received a kidney transplant in 2006 from my brother; 5 of 6 marker match. I was initially on Prograf but had problems. Doctors said it restricted my veins/arteries. I was switched to Rapamune and thought I was doing well until reading the contradictions listed here. I have had trouble with acne and sleeping for years and recently I started swelling in my feet and legs. I also suffer with neuropathy in my extremities. I was recently off Rapamune and noted the tingling in my hands and feet stopped. Has anyone else had this experience? Please so not misunderstand…I am very thankful for my second chance at life and enjoy each day but, I just wonder if there is a better drug for ME???? The tingling in my feet is a big distraction for me as it causes difficulty walking.
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Reviewer: Dede, 35-44 Female on Treatment for 10 years or more (Patient)

Comment:
I had a kidney transplant 19 years ago... received it from my brother. I've been on Rapamune for 10 years with very little side effects. I just hate that now my cholesterol is high and I have to take Zetia everyday.

Comment:
I had a kidney transplant 19 years ago... received it from my brother. I've been on Rapamune for 10 years with very little side effects. I just hate that now my cholesterol is high and I have to take Zetia everyday.
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Reviewer: luckie, 55-64 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I have had my kidney transplant 32 years. I was on a combination of Imuran and prednisone. However the Imuran was allowing so much skin cancer to develop, it was alarming. Three years ago I was switched to Rapamune and prednisone. The only negative side affect is some edema around my feet and ankles, especially the side where I had extensive skin caner with lymph node removal. The Rapamune has dim ... Show Full Comment

Comment:
I have had my kidney transplant 32 years. I was on a combination of Imuran and prednisone. However the Imuran was allowing so much skin cancer to develop, it was alarming. Three years ago I was switched to Rapamune and prednisone. The only negative side affect is some edema around my feet and ankles, especially the side where I had extensive skin caner with lymph node removal. The Rapamune has diminished the level of per-cancerous skin lesions. Other than that I hardly know the difference. Now seriously, the drug I wish I could dump is the prednisone, but my doctor has me on the lowest dose possible. Oh well. I am alive and enjoying life to the fullest.
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Reviewer: Rozik, 55-64 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
I had akidney transplant in April of 2009 my son was the donor,I was on cellcept and prograf and prednisone, but on July of 2010 I was diagnosed with central nervous system lymphoma,had intense chemo for the last 14 months,they switched me to 2mg.daily use of rapamune with no side effects,my cancer is in remmision and the kidney is doing perfect.

Comment:
I had akidney transplant in April of 2009 my son was the donor,I was on cellcept and prograf and prednisone, but on July of 2010 I was diagnosed with central nervous system lymphoma,had intense chemo for the last 14 months,they switched me to 2mg.daily use of rapamune with no side effects,my cancer is in remmision and the kidney is doing perfect.
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