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Read user comments about the side effects, benefits, and effectiveness of rapamune oral.

Overall User Ratings

33 Total User Reviews

User Reviews

1-5 of 21 Next»
Condition: Prevent Kidney Transplant Rejection
6/2/2013 12:31:36 PM

Reviewer: 45-54 Female (Patient)

Effectiveness

Current Rating: 1

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 1

Comment:
Rapamune is very dangerous especially for liver patients. if you dont believe me ask your doctor. This drug can and will kill you. I am kidney transplant patient 19 years. The Rapamune which I was on caused VENO OCCLUSIVE DISEASE and PORTAL HYPERTENSION, tiny veins in the liver are blocked causing ascites. I need paracentesis weekly to remove fluid from my abdomen, 2.5 to 2.8L every procedure. No ... Show Full Comment

Condition: Prevent Kidney Transplant Rejection
2/20/2013 8:48:46 PM

Reviewer: 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 1

Comment:
I had my transplant in the fall of 2007, unknown donor, at first I was on myfortic and prograf. I was switched from the myfortic to rapamune in 2009, at first I was doing well, had very little side effects and felt well, however by the summer of 2010 I had developed lymphodemia in my right arm, for no known reason. I've read that this is a rare side effect from the rapapmune and I'm hopin ... Show Full Comment

Condition: Prevent Kidney Transplant Rejection
7/23/2012 6:40:45 AM

Reviewer: Junbug, 35-44 Male on Treatment for 5 to less than 10 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 3

Comment:
I received a kidney transplant in 2006 from my brother; 5 of 6 marker match. I was initially on Prograf but had problems. Doctors said it restricted my veins/arteries. I was switched to Rapamune and thought I was doing well until reading the contradictions listed here. I have had trouble with acne and sleeping for years and recently I started swelling in my feet and legs. I also suffer with neu ... Show Full Comment

Condition: Prevent Kidney Transplant Rejection
2/22/2012 4:20:57 PM

Reviewer: Dede, 35-44 Female on Treatment for 10 years or more (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 3

Comment:
I had a kidney transplant 19 years ago... received it from my brother. I've been on Rapamune for 10 years with very little side effects. I just hate that now my cholesterol is high and I have to take Zetia everyday.

Condition: Prevent Kidney Transplant Rejection
2/10/2012 8:33:50 PM

Reviewer: luckie, 55-64 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
I have had my kidney transplant 32 years. I was on a combination of Imuran and prednisone. However the Imuran was allowing so much skin cancer to develop, it was alarming. Three years ago I was switched to Rapamune and prednisone. The only negative side affect is some edema around my feet and ankles, especially the side where I had extensive skin caner with lymph node removal. The Rapamune has dim ... Show Full Comment

1-5 of 21 Next»
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The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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