Reviewer: toylady, 55-64 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I was diagnosed in 1989. Did not take anything until 1998 and then was on Avonex until 2005. Had a minor episode and doctor pulled me off that and put me on Rebif. Didn't like it because it was 3X/wk. Stayed on Rebif until 2007. Felt better off the meds. They I had an episode of optic neurits in Dec. 2009 which was six months after my mom died. I went back on the Rebif and would have more e ... Show Full Comment

Comment:
I was diagnosed in 1989. Did not take anything until 1998 and then was on Avonex until 2005. Had a minor episode and doctor pulled me off that and put me on Rebif. Didn't like it because it was 3X/wk. Stayed on Rebif until 2007. Felt better off the meds. They I had an episode of optic neurits in Dec. 2009 which was six months after my mom died. I went back on the Rebif and would have more episodes. I don't feel it's helping me because of having more episodes. I was doing fine on Avonex. I inject in my stomach and my legs and have red marks all over from it. I feel quite depressed being on Rebif too and they want to put you on meds for that and I won't take them. Also was on Ampyra for walking and that was a disaster so I'm not on that. I am considering going off the Rebif again.
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Reviewer: polly, 55-64 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I was diagnosed in '05 started rebif right away. I do not get flu symptoms BUT-hair loss, my whole body has a rash called livedo reticularis, now I'm getting moles at lighting speed. No one can/will tell me it's the rebif. I'm on 22 mcg 'cause the 44 gave me horrid headaches. I will say I have been stable since my first horrible flare in '05. That is the only good thing. I really hate rebif b ... Show Full Comment

Comment:
I was diagnosed in '05 started rebif right away. I do not get flu symptoms BUT-hair loss, my whole body has a rash called livedo reticularis, now I'm getting moles at lighting speed. No one can/will tell me it's the rebif. I'm on 22 mcg 'cause the 44 gave me horrid headaches. I will say I have been stable since my first horrible flare in '05. That is the only good thing. I really hate rebif but I hate ms more..
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Reviewer: Artist, 55-64 Male on Treatment for 10 years or more (Patient)

Comment:
I have found this drug to be a disaster for me. after using it for a little less that 2 years, the side effects became so great that even the Rebiff personnel advised me to stop using it. It has been a year and a half since I used the drug and I still have marble size nodules that rupture and through me into vilant flu like symptums. Twice this week. The Rebiff hot line says that they understand ... Show Full Comment

Comment:
I have found this drug to be a disaster for me. after using it for a little less that 2 years, the side effects became so great that even the Rebiff personnel advised me to stop using it. It has been a year and a half since I used the drug and I still have marble size nodules that rupture and through me into vilant flu like symptums. Twice this week. The Rebiff hot line says that they understand and are sorry but can do nothing about it. Certainly you understand that I cannot ever reccomend this drug to anyone. MS is a bad deal, I have had it for 35 years. Avonex worked for me for about 10 years before trying rebif. my heart condition will not allow me to use any of the new pills. So My daughter got me on herble items that she found on-line. I was really skeptal about that but her badgering got me to try the items. the results are almost as good as the approved meds, but with zero side effects for the past one year.
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Reviewer: denise, 35-44 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
This drug has worked well.I have been on it for 5 years with great symptom control. However, I have just spent 4 days in hospital on IVs because of cellulitus in one of my injection sites. Am seriously considering changing meds because of the severity of the infection. Be careful with redness/swelling at injection site. It can be very serious!

Comment:
This drug has worked well.I have been on it for 5 years with great symptom control. However, I have just spent 4 days in hospital on IVs because of cellulitus in one of my injection sites. Am seriously considering changing meds because of the severity of the infection. Be careful with redness/swelling at injection site. It can be very serious!
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Reviewer: cleetaz, 55-64 on Treatment for 2 to less than 5 years (Patient)

Comment:
I've been on Rebif for two yrs and am sick of the side effects and the shots, and so have asked my neurologist for an oral MS me. He said I have to have another MRI in Jan and we'll see if he thinks I'll be okay on an oral med.

Comment:
I've been on Rebif for two yrs and am sick of the side effects and the shots, and so have asked my neurologist for an oral MS me. He said I have to have another MRI in Jan and we'll see if he thinks I'll be okay on an oral med.
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