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Read user comments about the side effects, benefits, and effectiveness of Xyrem Oral.

Overall User Ratings

99 Total User Reviews

User Reviews

«Previous 6-10 of 48 Next»
Condition: Recurring Sleep Episodes During the Day
2/20/2014 11:21:20 AM

Reviewer: Violet, 35-44 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 1

Satisfaction

Current Rating: 3

Comment:
This is a difficult drug in that it can be unpredictable and you have to get up in the middle of the night to take a second dose. when it works it works well, when it doesn't your in for a long night of pain.

Condition: Recurring Sleep Episodes During the Day
9/24/2013 3:19:54 PM

Reviewer: CSSW, 25-34 Female on Treatment for 5 to less than 10 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 4

Comment:
Sure, there are the side effects that "get me" every now and again (nausea, dizzy spells, "drunk" eating) but this drug has changed my life. I was on Ritalin (Provigil just didn't work for me) for several years, fighting to stay awake and finally, Xyrem was prescribed: I get the sleep I need at night, so I wake up refreshed and ready to start my day! Rather than taking a s ... Show Full Comment

Condition: Recurring Sleep Episodes During the Day
8/30/2013 11:57:50 PM

Reviewer: finally some zzzz's, 45-54 Female on Treatment for 1 to 6 months (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 4

Comment:
I am finally sleeping at night at 4.5 g twice a night. I don't need the alarm to wake me at the four hour mark, as I promptly wake up anyway after 3 - 4 hours after the first dose. I'd been on stimulants and CPAP alone without improvement. I'm so happy to finally sleep. I'm not working due to the narcolepsy episodes, and informed by the doctor I may need up 1-2 years to recov ... Show Full Comment

Condition: Recurring Sleep Episodes During the Day
5/23/2013 8:59:47 PM

Reviewer: sunshinesherry, 65-74 Female on Treatment for 5 to less than 10 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 3

Satisfaction

Current Rating: 5

Comment:
I was diagnosed by Mayo Clinic at age 16(now 72)so have suffered with narcolepsy with cataplexy nearly all my life. I've taken most of the meds prescribed for it butnothing has worked as well as Xyrem. It is truly a miracle drug for people with this disorder. The cost is now over $5500 per month and I can only afford this as I am on Medicare Part D insurance for seniors. In the five years I h ... Show Full Comment

Condition: Recurring Sleep Episodes During the Day
12/6/2012 5:48:56 PM

Reviewer: caradootdoot, Female on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 5

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
I have been taking Xyrem nightly for a year now twice (4.5) a night, along with Nuvigil during the day. I was at first trying to survive daily with the Nuvigil & when I started taking Xyrem at night, all of a sudden, my life has changed. I no am able to work & take care of my daughter & before I was diagnosed & treated, I was being accused of being on drugs, or being unfit as a pa ... Show Full Comment

«Previous 6-10 of 48 Next»

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The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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