Reviewer: livingproof, 25-34 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I have read all the reviews on this drug and I will tell you that I have been sick with Scleroderma for over 10 years. When I was first put on this medication I was only given up to 3 years to live. Well I was with this drug able to stablize my lung progression and get off of the medication. I am now however back on at a lower dose. I didnt care that I became sterile, changed by hair etc.. all ... Show Full Comment

Comment:
I have read all the reviews on this drug and I will tell you that I have been sick with Scleroderma for over 10 years. When I was first put on this medication I was only given up to 3 years to live. Well I was with this drug able to stablize my lung progression and get off of the medication. I am now however back on at a lower dose. I didnt care that I became sterile, changed by hair etc.. all I cared about was living for my son. Well I am proof that this drug does work. All of you that complained about the side effects well what would you rather have being alive or loosing your hair. I choose life.
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Reviewer: mp52orter, 55-64 Female on Treatment for 1 to 6 months (Patient)

Comment:
I hated the experience.

Comment:
I hated the experience.
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Reviewer: LionCub, 45-54 Female on Treatment for 5 to less than 10 years (Patient)

Comment:
I took this drug for many years without a problem.When i started taking 1000mg for the past 3 months,i lost my hair and my eyebrows/lashes began to thin.No side-effects when i took a lower dose.My health has been stable since i first diagnosed 9years ago.

Comment:
I took this drug for many years without a problem.When i started taking 1000mg for the past 3 months,i lost my hair and my eyebrows/lashes began to thin.No side-effects when i took a lower dose.My health has been stable since i first diagnosed 9years ago.
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Reviewer: 55-64 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
Side effects that I found difficult: the texture of my hair changed and has not changed back. It is straw-like or similar to cotton candy now. I lost quite a bit of hair and my hair is much thinner now, even after being off the drug for 6 months. Also, I developed an infection on my ankle that would not heal for 7 months; it was painful, uncomfortable and very costly to me. I had to go for dai ... Show Full Comment

Comment:
Side effects that I found difficult: the texture of my hair changed and has not changed back. It is straw-like or similar to cotton candy now. I lost quite a bit of hair and my hair is much thinner now, even after being off the drug for 6 months. Also, I developed an infection on my ankle that would not heal for 7 months; it was painful, uncomfortable and very costly to me. I had to go for daily infusions of antibiotics and had to see the doctor up to 3 times a week for treatment. I also had to wear a "boot" on my leg and foot, for healing purposes. I attribute this problem to the drug Cytoxan. Also, I developed 2 infections in my mouth which ended up in a root canal and the loss of one of my big molars--more cost to me. I go to the dentist regularly twice a year and have never had these problems, so I know the drug played a part in this also. My numbers on the PFT did not improve and even went down a little. All in all, if I had to do it over again, I would not take this drug.
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Reviewer: 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
The horrible side effects from this medication were not fully described to me by the prescribing physician. I was made sterile by this drug and put into early menopause. It DID NOT have any effect on my pulmonary fibrosis. It was prescribed so that it would slow the progression and it didn't work. It made me tired. I lost my hair. And I caught every germ that came along even using precautions. I ... Show Full Comment

Comment:
The horrible side effects from this medication were not fully described to me by the prescribing physician. I was made sterile by this drug and put into early menopause. It DID NOT have any effect on my pulmonary fibrosis. It was prescribed so that it would slow the progression and it didn't work. It made me tired. I lost my hair. And I caught every germ that came along even using precautions. I hated this drug!
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