Reviewer: 25-34 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I was diagnosed with IIH on Oct 31, 2012; I have been on Diamox ever since, 500mg 2x day. The side effects can come from nowhere and stop at anytime. The worst is the dry mouth; I always need water or gum around. I have lost as of today 5/21/13 60 lbs and I'm still struggling with IIH. I really wish they understood this condition more. The drug seems to put a band aid on the issue and has been pre ... Show Full Comment

Comment:
I was diagnosed with IIH on Oct 31, 2012; I have been on Diamox ever since, 500mg 2x day. The side effects can come from nowhere and stop at anytime. The worst is the dry mouth; I always need water or gum around. I have lost as of today 5/21/13 60 lbs and I'm still struggling with IIH. I really wish they understood this condition more. The drug seems to put a band aid on the issue and has been preventing me from going blind.
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Reviewer: Rosecallie1, 35-44 Female on Treatment for 1 to 6 months (Patient)

Comment:
I was diagnosed at the end of November, I started taking the medication and I felt worse the tingles in my feet and face along with the forgetfulness was almost unbearable. It is March now the swelling in my eyes has gone down and and the tingling isn't as bad I have also lost 17lbs, please if you are on this medication give it a chance don't quit!! It was painful for me in the beginning and t has ... Show Full Comment

Comment:
I was diagnosed at the end of November, I started taking the medication and I felt worse the tingles in my feet and face along with the forgetfulness was almost unbearable. It is March now the swelling in my eyes has gone down and and the tingling isn't as bad I have also lost 17lbs, please if you are on this medication give it a chance don't quit!! It was painful for me in the beginning and t has gotten so much better.
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Reviewer: Caitlin, 13-18 Female on Treatment for less than 1 month (Patient)

Comment:
I had to get on Diamox last month when i was diagnosed with IIH , but I now have more issues than I was having before the drug. My IIH caused me to have vision loss with some backaches along my spine and neck. I also had a spinal tap in which the pressure was 56 in which normal is 12-17. But i always felt like a healthy teenager, just one that couldn't see the board. But now with my Diamox I'm con ... Show Full Comment

Comment:
I had to get on Diamox last month when i was diagnosed with IIH , but I now have more issues than I was having before the drug. My IIH caused me to have vision loss with some backaches along my spine and neck. I also had a spinal tap in which the pressure was 56 in which normal is 12-17. But i always felt like a healthy teenager, just one that couldn't see the board. But now with my Diamox I'm constantly feeling weak with tingling on my face and feet, I get confused often, I sunburn easily, and soda is gross. Diamox makes me actually feel unhealthy, but its better than becoming blind.
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Reviewer: Supermom34, 25-34 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I was diagnosed with a Chiari Malformation and Pseudotumor back in Jan. 2008. I had neck decompression surgery done and I was put on Diamox in 2008. This medicine has helped me and I can tell if I do not take it, that I start feeling pressure where my CSF is built up at. I take the capsules 500mg twice every other day. I deal with cranial pressure daily and I have chronic migraines. I recently had ... Show Full Comment

Comment:
I was diagnosed with a Chiari Malformation and Pseudotumor back in Jan. 2008. I had neck decompression surgery done and I was put on Diamox in 2008. This medicine has helped me and I can tell if I do not take it, that I start feeling pressure where my CSF is built up at. I take the capsules 500mg twice every other day. I deal with cranial pressure daily and I have chronic migraines. I recently had botox injections for my migraines and that seemed to help some. I also had a shunt put in 2010.
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Reviewer: c_conway91, 19-24 Female on Treatment for less than 1 month (Patient)

Comment:
I was diagnosed with Pseudotumor Cerebri on Jan. 6th, 2012. So far, this is my second week going on Diamox and I haven't noticed any changes other than having to urinate way more frequently. Still experiencing symptoms of sudden blindness in my left eye and occasional tingling throughout my body. Soda tastes the same though, I still drink it all the time (wasn't asked not to) but I'm still experie ... Show Full Comment

Comment:
I was diagnosed with Pseudotumor Cerebri on Jan. 6th, 2012. So far, this is my second week going on Diamox and I haven't noticed any changes other than having to urinate way more frequently. Still experiencing symptoms of sudden blindness in my left eye and occasional tingling throughout my body. Soda tastes the same though, I still drink it all the time (wasn't asked not to) but I'm still experiencing symptoms of my diagnosis. I'm only 20 years old and my spinal tap pressure was at 45 (neuro told me its normally supposed to be about 12-17, 17 being high) so no wonder my head felt like it was going to explode lol. I'm on a research study to see if weight loss alone can help, but am also on high doses of diamox (possible placebo). Will update once more time has gone by.
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