Reviewer: DaveBo51, 55-64 Male on Treatment for 10 years or more (Patient)

Comment:
I was diagnosed 11 years ago with polycythemia vera and ET. I have taken 1500 mg every day since that day. I have had my white count up to 18 and as low as 4. My hair has thinned very much. No other problems with this drug.

Comment:
I was diagnosed 11 years ago with polycythemia vera and ET. I have taken 1500 mg every day since that day. I have had my white count up to 18 and as low as 4. My hair has thinned very much. No other problems with this drug.
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Reviewer: jlguzzy@aol.com, 35-44 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
I was on hydoxyurea for two years then I got a new Dr.. The first words out of his mouth at my first visit was "you need to stop this medication now,if you dont I can guarentee in 2o years time you will acquire lukemia because you are on it" Blew my mind that the Dr. that put me on it didnt tell me that nor the next Dr.Be careful who you trust.

Comment:
I was on hydoxyurea for two years then I got a new Dr.. The first words out of his mouth at my first visit was "you need to stop this medication now,if you dont I can guarentee in 2o years time you will acquire lukemia because you are on it" Blew my mind that the Dr. that put me on it didnt tell me that nor the next Dr.Be careful who you trust.
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Reviewer: Tony Z, 55-64 Male on Treatment for 2 to less than 5 years (Patient)

Comment:
I have had Polycythemia vera for about 5 years now. Have taken this med for about 4+ of those years, all my numbers are normal and it has helped me immensely

Comment:
I have had Polycythemia vera for about 5 years now. Have taken this med for about 4+ of those years, all my numbers are normal and it has helped me immensely
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Reviewer: Piggybanke, 55-64 Male on Treatment for 1 to 6 months (Patient)

Comment:
Polycythemia Vera. I started with two 500mg daily and after four months my numbers were looking very good and heading towards normal range. In week four, numbers went back up. Dr. changed me to 1000 mg every other day and 1500 the other days. I get my blood checked next week. Also scheduled me for two weeks of phlebotomies. I am hoping for the best.

Comment:
Polycythemia Vera. I started with two 500mg daily and after four months my numbers were looking very good and heading towards normal range. In week four, numbers went back up. Dr. changed me to 1000 mg every other day and 1500 the other days. I get my blood checked next week. Also scheduled me for two weeks of phlebotomies. I am hoping for the best.
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Reviewer: 65-74 Female on Treatment for 2 to less than 5 years (Patient)

Comment:
I was diagnosed with ET about two and a half years ago and took two 500 mg of hydrea a day. Nine months later I was told my kidney`s were failing. VERY devestating. I saw a nephrologist and have been able to stay off of dialysis by keeping a very strict diet. I switched hemotologists and asked if I could reduce my dosage to one a day and she agreed. My kidney function went up slightly. Now th ... Show Full Comment

Comment:
I was diagnosed with ET about two and a half years ago and took two 500 mg of hydrea a day. Nine months later I was told my kidney`s were failing. VERY devestating. I saw a nephrologist and have been able to stay off of dialysis by keeping a very strict diet. I switched hemotologists and asked if I could reduce my dosage to one a day and she agreed. My kidney function went up slightly. Now that second hemotologist only sees hospital patients and I`ve been assigned another hemotologist who wants me to take Anagrelide 0.5 mg once a day. This also is bad for your kidney`s. My main concern is my kidney`s and I`m at a loss as to what to do. I go in 3 weeks for another blood test. It`s a hard decision as to whether I want to die from a blood clot and heart attack or stroke, or die from kidney failure. There are a zillion problems with dialysis and transplant.
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