Reviewer: dardykay, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
About 3 months after starting this medication, I had bllodwork done by my family dr for my epilepsy, and he discovered my blood was "out of whack". He referred me to the blood and cancer center, where after 18 tubes of blood and 2 visits, it was discovered that the propylthiouracil was destroying my blood cells. During this time, I also developed a blistery rash on my hands, a ... Show Full Comment

Comment:
About 3 months after starting this medication, I had bllodwork done by my family dr for my epilepsy, and he discovered my blood was "out of whack". He referred me to the blood and cancer center, where after 18 tubes of blood and 2 visits, it was discovered that the propylthiouracil was destroying my blood cells. During this time, I also developed a blistery rash on my hands, and my regular family dr referred me to a deratologist, who performed a biopsy, and told me it was because of the thyroid med i was on. Also, the skin on bottom of both my feet started peeling off...I could actually peel off 3 layers of skin at a time. I went to my podiatrist (no referral here, i went on my own) and was asked what meds i had been taking, and when i told him propylthiouracil, his exact words were "OH my God" That is causing your skin to peel off. Also, I read the article where the prescribing dr is to monitor the patient for any problems...when i told him about the rash, he just said it will go away. He NEVER did any bloodwork or anything...good thing my family dr does the bloodwork every 6 months for my phenobarbital level because of my epilepsy. My family dr, when he heard from the blood and cancer center, called me and said..STOP taking that thyroid medicine. He wrote an order for the thyroid dr to perform a thyroid procedure, but when i gave the order to the thyroid dr, on my next visit, he said Nope...not gonna do that. Quack did not monitor me, or do anything but take my money.
Hide Full Comment

Reviewer: Molly's Mom, 25-34 Female on Treatment for less than 1 month (Patient)

Comment:
Here's my story: I just gave birth to my 1st baby in December 2010. My doctor suggested I go and see an endocrinologist doctor. After my 3rd(6months from February 2011) visit they finally took my blood and saw that something might be up. The reason for the long wait was because I was/am still nursing. They finally gave me the PTU prescription. I am a little nervous to take because I am still nursi ... Show Full Comment

Comment:
Here's my story: I just gave birth to my 1st baby in December 2010. My doctor suggested I go and see an endocrinologist doctor. After my 3rd(6months from February 2011) visit they finally took my blood and saw that something might be up. The reason for the long wait was because I was/am still nursing. They finally gave me the PTU prescription. I am a little nervous to take because I am still nursing my 7 1/2 month old baby. Anyone else taking this medication and nursing? Or did you have to stop because of the side affects? I would love some feedback on this. Thanks!
Hide Full Comment

Reviewer: karen, 45-54 Female on Treatment for 6 months to less than 1 year (Patient)

Comment:
I have been on the medication for approximately 6mos. or more. It seemed to help me feel better, do not like the bitter taste, get it down as quickly as possible. I take 50mg QD, and am under the care of an Endocrinologist. I was on Synthroid for years for underactive thyroid, but has large nodules that are causing overactive so have been placed on this medication to straighten the levels out. Hop ... Show Full Comment

Comment:
I have been on the medication for approximately 6mos. or more. It seemed to help me feel better, do not like the bitter taste, get it down as quickly as possible. I take 50mg QD, and am under the care of an Endocrinologist. I was on Synthroid for years for underactive thyroid, but has large nodules that are causing overactive so have been placed on this medication to straighten the levels out. Hope I do not have to remain on this medication indefinetely,but the only other option is removal of my thryroid gland.
Hide Full Comment

Reviewer: Skittler, 19-24 Female on Treatment for 1 to 6 months (Patient)

Comment:
I was diagnosed with severe hyperthyroidism with swollen glands. My heart rate was constantly 140-150bpm and now Im looking at 78-88bpm. THRILLED. I am taking the maximum dose 1,200mg a day (6 -50mg tablets 4x a day) It is hard for me to remember to take it four times a day. But Hyperthyroid comes with memory problems sometimes. :) The medication is slowly working. I keep getting blood drawn and i ... Show Full Comment

Comment:
I was diagnosed with severe hyperthyroidism with swollen glands. My heart rate was constantly 140-150bpm and now Im looking at 78-88bpm. THRILLED. I am taking the maximum dose 1,200mg a day (6 -50mg tablets 4x a day) It is hard for me to remember to take it four times a day. But Hyperthyroid comes with memory problems sometimes. :) The medication is slowly working. I keep getting blood drawn and it's still not down enough... Next option is surgery, so I am really hoping this maximum dose (went from 900- 1200mg) will knock it down a couple more steps.
Hide Full Comment

Reviewer: gina.zeolla@gmail.com, 35-44 Female on Treatment for 1 to less than 2 years (Patient)

Comment:
before i was diagnosed, i was feeling sick. my great dr. put me on the (plu) Dr. talk for propylylthiouracil, in 2 weeks i felt like a million bucks.

Comment:
before i was diagnosed, i was feeling sick. my great dr. put me on the (plu) Dr. talk for propylylthiouracil, in 2 weeks i felt like a million bucks.
Hide Full Comment