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3.2 Overall Rating

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Ease of Use

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Most voted positive review

15 People found this comment helpful

my nephlogist has written prescriptions for Rocaltrol, Calcitriol, zemplar, and sensipar. My insurance company will not pay for these medications. They said that they are not covered by our plan. What is so different about these medications that insurance will not cover them?

Most voted negative review

3 People found this comment helpful

When on this medication i get sick

Shared reviews and ratings

Ed Martino | 75 or over | Male | On medication for 6 months to less than 1 year | Patient
1/10/2019
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 1.3
Effectiveness
Ease of Use
Satisfaction

Not good. Too many side effects such as muscle pain and lack of appetite, back pain, and joint pain

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sweeternu | 55-64 | Female | On medication for 1 to 6 months | Patient
10/19/2018
Condition: High Amount of Calcium in the Blood from Increased Activity of the Parathyroid Gland
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

What bothers me is that I have cod but no renal failure and I am not on dialysis. Is this medicine hurting my kidneys?

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CraigInBaltimore | 55-64 | On medication for 5 to less than 10 years | Patient
2/8/2017
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 4.0
Effectiveness
Ease of Use
Satisfaction

Renal Transplant in 2007. In my Ninth year! Developed Hypoparathyroidism in third year. Began Sensipar and Calcitriol. Some muscle pain. No other side effects noticed. I take my meds RELIGIOUSLY same time with meals or as directed. Numbers are unfortunately, beginning to creep northward and have had to increase to 60 mg per day. I am treated and transplanted via JHU.

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judijudi0 | 75 or over | Female | On medication for 1 to less than 2 years | Patient
7/13/2016
Condition: High Amount of Calcium in the Blood from Increased Activity of the Parathyroid Gland
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

My calcium levels have dropped from 13.8 to 8.1. I have an overactive parathyroid. I have just been diagnosed with stage 4 kidney problem. BUT by biggest problem is that I am experiencing full-mouth hyperplasia. My gums are swollen and no amount of dental visits have helped. I can almost pinpoint this problem since I began taking Sensipar, but have not found any other back-up. Am curious if anyone else has had a problem with their teeth and/or gums.

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smokeyeyes03sbcglobal.net | 65-74 | Female | On medication for 5 to less than 10 years |
3/16/2015
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

i had a kidney transplant 2003, but my thyroid continued functioning. Yes, it is an expensive drug. No generic as yet. I have to pay |$189.00 for 15 pills. Plus my other immune suppressant pills. Other than surgery ? What

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patty | 75 or over | Female | On medication for 2 to less than 5 years | Patient
10/8/2014
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

My patient was taking sensipar in different doses but she has had 3 episodes where she had to go to hospital via ambulance with very high calcium levels-life threatening now she is scheduled to have the surgery on removal of 3 1/2 parathyroid glands on 10/10 and is very high risk on a low risk type of surgery,

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HAROL | 65-74 | Male | On medication for 6 months to less than 1 year | Patient
7/12/2013
Condition: High Amount of Calcium in the Blood from Increased Activity of the Parathyroid Gland
Overall rating 1.7
Effectiveness
Ease of Use
Satisfaction

MAKES ME GAIN WEIGHT AND GAVE ME BACK PAIN I HAVE NO CANCER OR HIGH CALCIUM, SO I DON'T KNOW WHY IT WAS PRESCRIBED

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Happy golfer | 65-74 | Female | On medication for 1 to 6 months | Patient
6/4/2013
Condition: High Amount of Calcium in the Blood from Increased Activity of the Parathyroid Gland
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

This medication has given me back my quality of life. All the associated side effects of extremely high calcium level in my blood - fatigue, lack of energy, irritation, depression et al - has disappeared after a couple of weeks already.

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Anna1441 | 55-64 | Female | On medication for 1 to 6 months | Patient
1/3/2013
Condition: Other
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I just completed a our week trial on this med. Have high calcium and phosphate levels and severe deficiency of Vit D. TSH levels are off. Scan of parathyroid showed no tumors. Yeat have all the classic symptoms along with bloodwork that says parathyroid tumor. Pain in legs was becoming unbearable. Also experienced symptome of irritable bowel symptom which is an opposite symptom. Noticed some improvement of symptoms by day three of Sensipar. Today being day 28, Leg pain is 90% gone, Bowel issues are no longer there. I feel all around so much better. Can't afford to continue this med so looks like parathyroid exploratory surgery will be in my near future. I took the med with the last meal of the day every day, no side effects when taken with a full stomach.Read More Read Less

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Anonymous | 55-64 | Female | On medication for 1 to 6 months | Patient
9/12/2012
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction

I have stage 5 CKD, and take sensipar with my largest meal of the day.I have experienced no side effects at all. Along with it I also take Calcitriol 3times a week. I take a potassium supplement and a Nephro vitamin daily. Have no symptoms of the CKD, and feel much better overall taking the Sensipar.

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sesom | 65-74 | Male | On medication for less than 1 month | Patient
5/1/2012
Condition: High Amount of Calcium in the Blood from Increased Activity of the Parathyroid Gland
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

This drug caused an acute lung infection requiring 3 rounds of antibiotics

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afreemandian | 45-54 | Female | On medication for 6 months to less than 1 year | Patient
2/11/2012
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 1.0
Effectiveness
Ease of Use
Satisfaction

I stopped useing sensipar because I stayed sick,vomiting and seeing things. That were not there I couldn't drive I was bed ridden because my bones hurt. My eyes hurt and I could not trust. What I see.

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Anonymous | 45-54 | Male | On medication for 2 to less than 5 years | Patient
9/14/2011
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 4.3
Effectiveness
Ease of Use
Satisfaction

Taking this medication has improved my PTH, Phosphorus, and Calcium numbers. I haven't had any side effects. This saved me from surgery.

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shellyg0 | 55-64 | Male | Patient
8/16/2011
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 2.7
Effectiveness
Ease of Use
Satisfaction

Many have complained because this drug is so expensive and many insurers will not pay for it. If you have private insurance drug coverage ask your dietician or nephrologist for the manufacturers co-pay card from AMGEN pharma. This discount card will reduce your co-pay to just $5 and is good for 12 refills!

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Majorminor | 55-64 | Male | On medication for 6 months to less than 1 year | Patient
6/9/2011
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 2.0
Effectiveness
Ease of Use
Satisfaction

The drug does not work. Yaking Pgospgate Binders are the most important effective treatment to lower PTH. I was on Dialysis 10 years prior to Densipar and managed fine. The Hype the doctors take on Bone loss is Baloney. Removing Parathyroid is a big mistake especially of you later get a transplant. Dr;s are making a fortunee prescribing this frig it is all a scam. Take your Pgosphate Biners vut out high Phos Foods Don't be a jerk You dont need Sensipar!!!!!

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Clara | 65-74 | Female | Caregiver
10/14/2010
Condition: Other
Overall rating 1.0
Effectiveness
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am not taking Sensipar. clicked the stars above for this to process. am searching for info on relation of long-term lithium use and hyper-parathyroid. surgery of only one parathyroid (only one is hyper) has been recommended (or taking sensipar) but am afraid continued use of lithium will cause the hyperparathyroid to recur. have been told no cancer is present. If unable to help can you refer someone? Appreciate any info.

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Anonymous | 65-74 | Male | On medication for 1 to 6 months | Patient
9/28/2010
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction
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Frightened | 45-54 | Female | On medication for 2 to less than 5 years | Patient
9/17/2010
Condition: Other
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I have been diagnosed with MEN1 and Zollinger-Ellison syndrome. I do not have kidney or adrenal failure. I have had partial removal of my parathyroid glands twice and still my PTH level remains high. After my second surgery was unsuccessful in bringing my PTH levels, my doctors refused to perform a third surgery because my health insurance was insufficient and I could not afford to pay the difference between what was charged and what was covered. My endocrinologist then put me on Sensipar and I have remained on it for four years. In that time I develpoed a malignant brain tumor. I am very concerned this medication caused the tumor but I have no way to find out because there has never been anyone who has either taken the medication for that long a period of time or for my condition. Yet my doctors will not check to see what long term complications arise from sensipar nor will they perform another surgery or take me off the medication. I sometimes feel as though I am a human gunea pig for their private test to see the long term affects of sensipar on a human being with MEN1 and ZES.Read More Read Less

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sherry | Female | On medication for less than 1 month | Patient
9/4/2010
Condition: Hyperparathyroidism caused by Chronic Renal Failure with Dialysis
Overall rating 3.0
Effectiveness
Ease of Use
Satisfaction

I have a major leg cramps while taking this medication

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Anonymous | 55-64 | On medication for 6 months to less than 1 year | Patient
8/19/2010
Condition: Other
Overall rating 2.3
Effectiveness
Ease of Use
Satisfaction

Sensipar was prescribed by my doctor. I found that at 1st I felt ok but nausea increased and over time it got worse. I have primary parathyroidism and am on dialysis due to an inefficient, overzealous surgeon who didn't know when to quit. I cannot personally say I'm happy with the results of it. I'm no longer using it and will NEVER go back on it.

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