User Reviews for Prialt intrathecal

I’ve had chronic pain due to several autoimmune diseases including enclosing spondylitis. They put the pain pump in 2018. At that time I lived in Texas, and they put microdoses of morphine in the pump which did no good. I moved to Tennessee only to find out that hardly any pain doctors (none in my area) will touch anyone with a pain pop they would rather cram fistful of oral narcotics down your throat. so I finally found a doctor in Atlanta about 2 1/2 hours away. Is absolutely a godsend!! Upping the dosage of the morphine and adding another drug but very quickly I had bad side effects. We did this twice before Nurse told me about Prialt. he agreed to give it a try and started slowly upping the dose every four weeks. I start to have some mood swings, headaches but my pain was lessening. Then, six weeks ago after another increase, I started having really hard time with dizziness, nausea, vomiting, and just feeling very unsteady of my feet. Then shortly there after I could not urinate it was horrible so they immediately came back and backed me down to where it was before. Three weeks later, I’m still feeling my mood swings are worse so I called her today to ask to take it down one more notch. I’m not ready to quit, but those are side effects. I’m not willing to deal with besides, they are extremely dangerous. On a sidenote, not too long after I started the drug I started hearing music in my head. I had to ask other people if they heard it and of course they did not. Then, it changed to where I only hear it in one room of my house, my bedroom, which is where I’m laying down most of the time. So I’m not sure if that is anything to do with or not but just like the other guy, it’s like I have my own in my head. But I can’t control the songs or volume. A lot of this music I had never heard before. At least I didn’t think I had. This is the only side effect I hope to keep. :)Read More Read Less

My experience with this drug was my nightmare. On surgery day starting with 2 micrograms I had urine retention and got catheterized for 2 weeks. dosage went to 3 micrograms end of the two weeks and started feeling like someone had rubbed me down in bengay. The end of 3 weeks after surgery the pain pump had to be refilled with a reconcentrated medication and dosage was up 10%, I started with severe vomiting severe diarrhea and the best way to describe this feeling of torture is filling that someone had doused me and gasoline and lit me on fire.. I ended up in the emergency room treated for severe allergic reaction to prialt. Early the following morning at 6:00 a.m. I end up back in the same emergency room except now the heat has intense into torturous pain, it is in my mouth going down my throat into my chest wall In the palm of both hands between my legs and the palm of both feet. Screaming and crying for someone to turn the pump off, they had absolutely no idea what I was talking about and looked at me like I was crazy they asked me what I was having reaction to I tell them p r i a l t He said what's that? I say snail venom.. ?? They roll their eyes and start walking out of the room like I'm a crackhead that just came through their door wanting to fix. I scream stop wait.. I asked the nurse to get my wallet from my wheelchair and handed them the card that's got the serial number to my pain pump.. 08 members of the staff that was in my room immediately jumped into auction. I don't think I've ever seen medical staff move so quickly at one time, so if you have a pain pump please carry the card that you get in the mail after your surgery it could save you a lot of time trying to explain things they don't understand. I'm still on a very small dose of prialt and still having pretty bad side effects so I'm on oral pain medication for those side effects until tomorrow morning get the pump stopped and then we can start morphine. This medication is very tricky and has some really bad side effects please do your homework before using this medication in your pump. Read More Read Less

Very few medical providers are familiar with Prialt. No long-term studies done. No help from the manufacturer or distributor to find a new doctor. Dosing increases are more of a guess than science. Despite assurance from all medical paperwork, decreasing the dose by 50% ( from around 1.8mg) triggered severe WITHDRAWAL symptoms.

I was in the original clinical trials. I love the use of this drug in my ITP. It works very well and I have not had any side effects. This is truely a god-send drug. I wish more doctors would use this drug. With all the problems with opiods, this drug should be a must use. Thanks, Prialt scientists for developing this wonderful drug.

Prialt was the only med that helped my daughter. It controlled her pain during childhood where her pain kept her in a wheelchair. It allowed her to get a masters degree in special education. Mitochondrial disease may limit her but prialt gave her enough pain control to allow her to live her life

PriAlt caused one of the worst experiences in my life. Given that I still feel it could work for other people. It completely changed my personality. I won’t go into details but iit was a dark time.

Catheter went through spine and now their telling me that I need these quantum batteries for it to last and not go through batteries like water.Medtronic is a joke.

I had a horrible experience with this medication I had euphoria Severely if no one knows what that means it's like the effects of a pain medication when you feel that in your body mine was times 10 non-stop for 8 days. I also had all the effects from mental health depression mood anxiety. It made my mental health issues explode I could not control them didn't sleep for eight days finally doctor took the medication out of my pump and it changed everything that happened to me back to normal except for the pain. Read More Read Less

The pain relief was very good but the side effects were unbearable. My gait was severely affected, loss of memory, paranoia, severe tremors, music in head, renal problems, complete loss of appetite, irritable, could not concentrate, blurred vision, severe pain in limbs. I had to quit driving because of disorientation to time and place. I had Prialt removed in April and it took about a month to begin to feel the side effects subsiding; although, I still feeling lingering side effects. At first no one believed me. I still don't know how the symptoms spread but I do know, no relief is worth losing your mental capacity. Go slowly and be careful.Read More Read Less

I've been on Prialt for about 6 years. I've had no side effects that I can think of. I broke my lower spine and upper spine in several places during military career and my pain was horrible and ultimately ended my career, however Prialt made all the difference for me. I'm able to be a somewhat active dad and no longer take narcotics. I took narcotics for about 4 years before have a Medtronic synchromed II placed. I am on my 3rd pump and have no complaints about Prialt. Only that it's a serious game changer.Read More Read Less

I was talking during a trial and I have never been more agitated and couldn't stop moving like restless leg syndrome and also found I was unable to urinate and when walking my legs were so weak I will never ever feel like I did taking this

For the first time in 20 years my pain is nearly gone. I am shocked how well it's working. The only bad part is it seems to make it harder to breathe(I have emphysema). I took it for severe chronic pain after multiple lower back & hip surgeries. Decades on oral narcotics never have this relief.

This has been a positive treatment, and because of the way it is working, I have been able to NOT be taking 'drugs' for the pain. (I was taking way to much narcotic medication, but only as prescribed.... and my system became toxic.) I have had one pump replacement after 6-7 years, and now about half way through the second. I cannot say it was easy, but much easier than before. I cannot say it was painless, because regulating the amount of Prialt took some real time. Now I really want to know if some of my other problems could have anything to do to Prialt. Like stones, or elevated WBC. Read More Read Less

Because intrathecally infused morphine has caused severe chronic lymphoedaema, the doctor was slowly decreasing the morphine and increasing the Prialt, so it took several months for the side effects of Prialt to become so pronounced as to be obvious ~ also because those side effects were compromising my critical thinking ability to assess the degree of the side effects. The side effects were an increasing memory deficit, and what became rather severe narcolepsy. I was sleeping 18 hours or more/day, I would fall asleep while performing functions... while brushing my teeth, thankfully the feeling of my legs giving way and the clatter of the toothbrush hitting the sink would wake me in time to keep from falling completely to the floor. Because if I fall asleep in my chair it is painful for my back/legs, once when I could tell it was coming on, and without thinking I made for the stairs to get up to my bed before it hit . . . but I did not make it and fell asleep, thankfully falling forward onto the stairs. If I'd been going downstairs when it hit, I would have fallen down the stairs. Even trying the stairs shows the level of impaired judgment. I was afraid to drive, could not track medication dosing for my elderly mother, could not remember day of the week and kept missing appointments. Clearly I was not functioning, the Prialt had to go. Thankfully, within a few days of the next pump refill without Prialt, the side effects began to decrease. I had hope that the side effects would fade altogether, but now a year afterward, I still have a moderate form of narcolepsy, and my memory/critical thinking have never completely returned to normal. I can at least function now, but I am still apparently permanently impaired by the Prialt.Read More Read Less

I did not have music playing in my head but did have issues headaches, sinus teeth issues, concentration, and irritability. It took me a week to get pain relief and it was minimal. I would not have considered going back to work while on it. My flow was low at 1.2 and I recommend no higher than that to begin with. I have switched to morphine and am slowly making progress on pain levels.

My intrathecal pain pump was filled w/prialt 2006-2016. It was the only time I've been almost pain free after 2 bouts of cancer. I only stopped due to new Dr unable(unwilling)to find a way to fill it for me saying it was cost prehibitive. I was able to tolerate side effects by reducing PRIALT and increasing rider. I would love to go back on it as nothing else gives me the pain relief as PRIALT did. I hate taking pain relievers by mouth due to all their side effects , especially difficulty thinking clearly. Please make PRIALT available to us again.Read More Read Less

Prialt is very effective for pain relief. I was pain free for the first time in 10 years. The only problem was it destroyed my ability to form memories, made me constantly irritable and over emotional. If they could reduce the side effects it would be great. Unfortunately it left me a crying, screaming near psychotic.

Hallucinations, depression, thoughts of suicide, loss of memory and Lost all desire for intimacy. My pain doctor charged 5 times what same dosage of dilaudid cost. Possible secondary gain? If you like to gamble, try prialt.

Had Prialt in my naive pump for less than 24 hours and had a severe allergic reaction. My dr had to remove the med from my pump & catheter then rinse & flush my pump. This was a bad experience. Should have listened to the reviews.

I have been still having lot of pain in the last 11/2 months I been having a lot of changes with my body.my tummy feels like a burning of a knife cutting inside in the last month I have been having my hands and legs shake last very shortly.now in 3 wewks I have my body shakes don't last long but seems too happen more often.when things first started I thought heck its my nerves but now I have different thoughts.i go to dr today where they have told me im at 33% and they will decrease it some.im really scard I haven't ever had this happen till I got on this med Read More Read Less