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Read user comments about the side effects, benefits, and effectiveness of Thiola Oral.

Overall User Ratings

6 Total User Reviews

User Reviews

1-5 of 6 Next»
Condition: Kidney Stones caused by Cystine
9/17/2013 11:45:28 PM

Reviewer: aek, 19-24 Female on Treatment for 1 to less than 2 years (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 4

Satisfaction

Current Rating: 3

Comment:
I haven't noticed a decrease in stone production since starting this medication, but I do not have more stones than before. The only bad side effect I get from this is that my tongue can go numb sometimes.

Condition: Kidney Stones caused by Cystine
11/2/2012 3:54:30 PM

Reviewer: Dave, 45-54 Male on Treatment for 6 months to less than 1 year (Patient)

Effectiveness

Current Rating: 2

Ease of Use

Current Rating: 1

Satisfaction

Current Rating: 1

Comment:
Be careful. I was on this medicine and my platelet count went way down four years ago. Since then the platelets have not returned to normal levels. I am going for another surgery (11/2012) and have to take medicine just to increase the platelets.

Condition: Kidney Stones caused by Cystine
12/8/2011 1:52:12 AM

Reviewer: stefkat461, 55-64 Male on Treatment for 10 years or more (Patient)

Effectiveness

Current Rating: 3

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 5

Comment:
the only drug that actually helped slow down the production of kidney stones is thiola unfortunately since the % of users who have the disease cystinuria is small. The drug co was unable to reduce its rates and so medicare in 2010 dropped it off its formulary. since the cost is to high most users stopped taking the drug. this is a outrage. any physician who has experienced the pain of a stone will ... Show Full Comment

Condition: Kidney Stones caused by Cystine
7/17/2010 5:51:45 PM

Reviewer: ellenlee36, 35-44 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 4

Comment:
ive been thiola for a couple years now ,y level was 1000,then it went down to 400 in may now that my doc increased the meds to 900mg a day my level has gone up, we cant figure out why, Ive had 26 surgerys since 1984 and have not had to have surgery since 1995, its better than the depenicillamen that made my hair fall out, one of the side effects of thiola is it makes ur teeth go bad, I had perfect ... Show Full Comment

Condition: Kidney Stones caused by Cystine
6/22/2009 10:07:36 AM

Reviewer: gailene, 45-54 Female on Treatment for 2 to less than 5 years (Patient)

Effectiveness

Current Rating: 4

Ease of Use

Current Rating: 5

Satisfaction

Current Rating: 3

Comment:
this drug has helped me but I have to take 3 pills 3 times a day. Plus when I hit the gap in the insurance I have to pay over $300 per month. That is hard but better than having kidney stones blasted every 6 months!

1-5 of 6 Next»
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The opinions expressed in WebMD User-generated content areas like communities, reviews, ratings, or blogs are solely those of the User, who may or may not have medical or scientific training. These opinions do not represent the opinions of WebMD. User-generated content areas are not reviewed by a WebMD physician or any member of the WebMD editorial staff for accuracy, balance, objectivity, or any other reason except for compliance with our Terms and Conditions. Some of these opinions may contain information about treatment or uses of drug products that have not been approved by the U.S. Food and Drug Administration. WebMD does not endorse any specific product, service, or treatment.

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