Son has Lennox Gastraut synd. and has been on 13+ different seizure meds - now hes only on 4 daily, a VNS Inplant and 2 prn meds for seizures but - his seizures have signigicantly calmed down a bit since taking Clobazam. He's been on this drug for over a year but had to order it out-of-the-country. Now thats it's FDA approved in the U.S. he's been switched over to Onfi - so lets wait and see if ...
My son has a vns an on 4 other kind of seizure . Doctor want to try clobazam. Medicare, tricare rejected this medication & I don't have the money to see if this drug will work. the other seizure meds are lyrica,zonisamide,depakote,levocareitine,clexa,L-menthylfolate.
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Ashley 38301 | 35-44 | On medication for less than 1 month | Patient
7/23/2019
Condition: Additional Medication for Myoclonic Epilepsy
Overall rating 5.0
Effectiveness
Ease of Use
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Only been on this for a couple of weeks but IT HAS TREMENDOUSLY HELPED MY MYOCLONIC JERKS !!!
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Ashley 38301 | 35-44 | Female | On medication for less than 1 month | Patient
7/23/2019
Condition: Additional Medication for Myoclonic Epilepsy
Overall rating 5.0
Effectiveness
Ease of Use
Satisfaction
Only been on this for a couple of weeks but IT HAS TREMENDOUSLY HELPED MY MYOCLONIC JERKS !!!
2
Report this post
Charlie | 35-44 | Male | On medication for less than 1 month | Caregiver
My son has a vns an on 4 other kind of seizure . Doctor want to try clobazam. Medicare, tricare rejected this medication & I don't have the money to see if this drug will work. the other seizure meds are lyrica,zonisamide,depakote,levocareitine,clexa,L-menthylfolate.
4
5
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destiny1 | 45-54 | Female | On medication for 1 to less than 2 years | Caregiver
Son has Lennox Gastraut synd. and has been on 13+ different seizure meds - now hes only on 4 daily, a VNS Inplant and 2 prn meds for seizures but - his seizures have signigicantly calmed down a bit since taking Clobazam. He's been on this drug for over a year but had to order it out-of-the-country. Now thats it's FDA approved in the U.S. he's been switched over to Onfi - so lets wait and see if there's a difference.
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