Epilepsy Resources
This listing is provided for your reference and is not a complete list of available resources.
American Epilepsy Society
342 North Main Street
West Hartford, CT 06117
Phone: (860) 586-7505
www.aesnet.org
Understanding Epilepsy -- the Basics
Epilepsy is a brain disorder characterized by recurrent seizures -- episodes of abnormal electrical activity in almost any part of the brain. The symptoms of a seizure can mimic any form of human behavior, depending on which part(s) of the brain are affected. Generally, the term epilepsy (or seizure disorder) refers to relatively stereotyped attacks of involuntary behavior. The exact symptoms and severity may vary, and the seizures may occur infrequently or in rapid succession. While every case...
Read the Understanding Epilepsy -- the Basics article > >
The American Epilepsy Society is a professional organization of physicians and epilepsy researchers. For patients, the society offers materials on epilepsy drugs and on drug assistance programs.
Child Neurology Foundation
1821 University Avenue West, Suite N-188
Saint Paul, Minnesota 55102
Phone: (651) 645-4319
Fax: (651) 645-4349
http://childneurologyfoundation.org/
E-mail: cnf@childneurologyfoundation.org
The Child Neurology Foundation is a patient advocate organization. The foundation provides funding for research and educational programs for patients and families.
Epilepsy.com
www.epilepsy.com
E-mail: webmaster@epilepsyproject.org
Epilepsy.com offers in-depth information for patients with epilepsy and their families. In addition to data on diagnosis and treatment, the website has tips on living with epilepsy, news, a resource library and information on epilepsy research.
National Institute of Neurological Disorders and Stroke
National Institutes of Health
PO Box 5801
Bethesda, MD 20824
(800) 352-9424
www.ninds.nih.gov/
The National Institute of Neurological Disorders and Stroke (NINDS) is a part of the National Institutes of Health. NINDS conducts and supports research into neurological disorders (such as epilepsy). The NINDS website offers information on funding, clinical trials and the latest news on research and treatment of neurological illnesses.
Parents Against Childhood Epilepsy (PACE), Inc.
7 East 85th Street, Suite A3
New York, NY 10028
Phone: (212) 665-PACE (7223)
Fax: (212) 327-3075
E-mail: pacenyemail@aol.com
http://www.paceusa.org
PACE was founded by parents of children who have epilepsy. The organization raises funds for research into epilepsy and offers information, seminars and support to families.
The Charlie Foundation to Help Cure Pediatric Epilepsy
1223 Wilshire Boulevard, #815
Santa Monica, CA 90403
Phone: (310) 395-6751
Fax: (310) 393-1978
www.charliefoundation.org
The Charlie Foundation provides information on the ketogenic diet treatment for epilepsy, including educational programs and training seminars for health care professionals, research support, and patient education materials (including books and videos).
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