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    Status Epilepticus

    Important
    It is possible that the main title of the report Status Epilepticus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    Disorder Subdivisions

    • Grand Mal Epilepsy
    • Major Epilepsy
    • Status Epilepticus
    • Jacksonian Epilepsy
    • Focal Epilepsy
    • Myoclonic Progressice Familial Epilepsy
    • Unverricht Syndrome
    • Lundborg-Unverricht Disease
    • Unverricht-Lundborg-Laf Disease
    • Petit Mal Epilepsy
    • Minor Epilepsy
    • Pyknoepilepsy
    • Akinetic Seizure
    • Myoclonic Seizure
    • Myoclonic Astatic Petit Mal Epilepsy
    • Petit Mal Variant
    • Febrile Seizures
    • Psychomotor Epilepsy
    • Temporal Lobe Epilepsy
    • Psychomotor Equivalent Epilepsy
    • Psychomotor Convulsion
    • Epilepsia Procursiva
    • Abdominal Epilepsy

    General Discussion

    Status epilepticus (SE) is considered a neurological emergency. Left untreated (or undertreated), prolonged seizures can cause permanent neurological injury or death. Rapid treatment must be initiated. If initial agents fail, it may be necessary to induce an iatrogenic coma. In any case, the person in status epilepticus must be closely watched, and often requires continuous EEG in order to confirm that the seizures have stopped not only clinically but electrically as well.

    Resources

    March of Dimes Birth Defects Foundation
    1275 Mamaroneck Avenue
    White Plains, NY 10605
    Tel: (914)997-4488
    Fax: (914)997-4763
    Tel: (888)663-4637
    Email: Askus@marchofdimes.com
    Internet: http://www.marchofdimes.com

    Epilepsy Foundation
    8301 Professional Place
    Landover, MD 20785-7223
    Tel: (866)330-2718
    Fax: (877)687-4878
    Tel: (800)332-1000
    TDD: (800)332-2070
    Email: ContactUs@efa.org
    Internet: http://www.epilepsyfoundation.org

    PHP - Parents Helping Parents, Inc.
    Sobrato Center For Nonprofits San Jose
    1400 Parkmoor Avenue,
    Suite 100
    Santa Clara, CA 95126
    USA
    Tel: (408)727-5775
    Fax: (408)286-1116
    Tel: (866)747-4040
    Email: info@php.com
    Internet: http://www.php.com

    NIH/National Institute of Neurological Disorders and Stroke
    P.O. Box 5801
    Bethesda, MD 20824
    Tel: (301)496-5751
    Fax: (301)402-2186
    Tel: (800)352-9424
    TDD: (301)468-5981
    Internet: http://www.ninds.nih.gov/

    AED Pregnancy Registry - Massachusetts General Hospital
    121 Innerbelt Road, Room 220
    Somerville, MA 02143
    Tel: (617)724-9550
    Fax: (617)724-8307
    Tel: (888)233-2334
    Email: holmes.lewis@mgh.harvard.edu
    Internet: http://www.aedpregnancyregistry.org

    American Epilepsy Society
    342 North Main Street
    West Hartford, CT 06117-2507
    Tel: (860)586-7505
    Fax: (860)586-7550
    Email: khucks@aesnet.org
    Internet: http://www.aesnet.org

    Epilepsy Canada
    2900 John St., Suite 402
    Markham
    Ontario, L3R 5G3
    Canada
    Fax: 9055139461
    Tel: 8777340873
    Internet: http://www.epilepsy.ca

    Organisation For Anti-Convulsant Syndrome
    131 Summertrees Road
    Ellesmere Port
    Cheshire, CH66 2BE
    United Kingdom
    Tel: 01513565949
    Email: enquiries.oacs@gmail.com
    Internet: http://www.oacs-uk.co.uk/

    New Horizons Un-Limited, Inc.
    811 East Wisconsin Ave
    P.O. Box 510034
    Milwaukee, WI 53203
    USA
    Tel: (414)299-0124
    Fax: (414)347-1977
    Email: horizons@new-horizons.org
    Internet: http://www.new-horizons.org

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Dravet.org
    P.O. Box 797
    Deale, MD 20751
    USA
    Tel: (443)607-8267
    Email: info@Dravet.org
    Internet: http://www.dravet.org

    LGS Foundation, Inc.
    192 Lexington Avenue
    New York, NY 10016
    Tel: (718)374-3800
    Email: christina@lgsfoundation.org
    Internet: http://www.lgsfoundation.org

    Matthew's Friends
    St. Piers Lane
    Lingfield
    Surrey, RH7 6PW
    United Kingdom
    Tel: 01342836571
    Fax: 07884054811
    Tel: 07884054811
    Email: enq@matthewsfriends.org
    Internet: http://www.matthewsfriends.org

    Child Neurology Foundation
    201 Chicago Ave, #200
    Minneapolis, MN 55415
    USA
    Tel: (952)641-6100
    Fax: (952)881-6276
    Tel: (877)263-5430
    Email: jstone@childneurologyfoundation.org
    Internet: http://www.childneurologyfoundation.org

    CURE: Citizens United for Research in Epilepsy
    223 W. Erie
    Suite 2SW
    Chicago, IL 60654
    Tel: (312)765-7118
    Fax: (312)255-1801
    Tel: (800)765-7118
    Email: info@CUREepilepsy.org
    Internet: http://www.CUREepilepsy.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 1/3/2007
    Copyright 1985, 1989, 1990, 1991, 1992 1992, 1993, 1994, 1995, 1996, 1997, 1998, 1999, 2000, 2002, 2007 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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