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National Institute of Neurological Disorders and Stroke

(continued)

Organizations

Citizens United for Research in Epilepsy (CURE)
730 N. Franklin
Suite 404
Chicago, IL   60610
info@CUREepilepsy.org
http://www.CUREepilepsy.org
Tel: 312-255-1801
Fax: 312-255-1809

Epilepsy Foundation
4351 Garden City Drive
Suite 500
Landover, MD   20785-7223
postmaster@efa.org
http://www.epilepsyfoundation.org
Tel: 301-459-3700 800-EFA-1000 (332-1000)
Fax: 301-577-2684

Epilepsy Institute
257 Park Avenue South
New York, NY   10010
website@epilepsyinstitute.org
http://www.epilepsyinstitute.org
Tel: 212-677-8550
Fax: 212-677-5825

Parents Against Childhood Epilepsy (PACE)
7 East 85th Street
Suite A3
New York, NY   10028
pacenyemail@aol.com
http://www.paceusa.org
Tel: 212-665-PACE (7223)
Fax: 212-327-3075

Family Caregiver Alliance/ National Center on Caregiving
180 Montgomery Street
Suite 1100
San Francisco, CA   94104
info@caregiver.org
http://www.caregiver.org
Tel: 415-434-3388 800-445-8106
Fax: 415-434-3508

National Council on Patient Information and Education
4915 St. Elmo Avenue
Suite 505
Bethesda, MD   20814-6082
ncpie@ncpie.info
http://www.talkaboutrx.org
Tel: 301-656-8565
Fax: 301-656-4464

National Family Caregivers Association
10400 Connecticut Avenue
Suite 500
Kensington, MD   20895-3944
info@thefamilycaregiver.org
http://www.thefamilycaregiver.org
Tel: 301-942-6430 800-896-3650
Fax: 301-942-2302

National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT   06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291

IRSA (International RadioSurgery Association)
P.O. Box 5186
Harrisburg, PA   17110
office@irsa.org
http://www.irsa.org
Tel: 717-260-9808
Fax: 717-260-9809

Charlie Foundation to Help Cure Pediatric Epilepsy
1223 Wilshire Blvd.
Suite #815
Santa Monica, CA   90403
ketoman@aol.com
http://www.charliefoundation.org
Tel: 800-FOR-KETO (367-5386) 310-395-6751
Fax: 310-393-1978

Epilepsy Therapy Development Project
11921 Freedom Drive
Suite 730
Reston, VA   20190
http://www.epilepsytdp.org
Tel: 703-437-4250
Fax: 703-437-4288

Antiepileptic Drug Pregnancy Registry
MGH East, CNY-149, 10th Floor
149 13th Street
Charlestown, MA   02129-2000
ebaldwin@partners.org
http://www.aedpregnancyregistry.org
Tel: 888-AED-AED4 (233-2334)
Fax: 617-724-8307

WebMD Public Information from the U.S. National Institutes of Health

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