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    National Institute of Neurological Disorders and Stroke

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    What research is being done?

    Scientists are studying potential antiepileptic drugs with goal of enhancing treatment for epilepsy. Scientists continue to study how neurotransmitters interact with brain cells to control nerve firing and how non-neuronal cells in the brain contribute to seizures. One of the most-studied neurotransmitters is GABA, or gamma-aminobutryic acid. Researchers are working to identify genes that may influence epilepsy. This information may allow doctors to prevent epilepsy or to predict which treatments will be most beneficial. Doctors are now experimenting with several new types of therapies for epilepsy, including transplanting fetal pig neurons into the brains of patients to learn whether cell transplants can help control seizures, transplanting stem cells, and using a device that could predict seizures up to 3 minutes before they begin. Researchers are continually improving MRI and other brain scans. Studies have show that in some case, children may experience fewer seizures if they maintain a strict diet - called the ketogenic diet - rich in fats and low in carbohydrates.

    Organizations

    Citizens United for Research in Epilepsy (CURE)
    730 N. Franklin
    Suite 404
    Chicago, IL 60610
    info@CUREepilepsy.org
    http://www.CUREepilepsy.org
    Tel: 312-255-1801
    Fax: 312-255-1809

    Epilepsy Foundation
    4351 Garden City Drive
    Suite 500
    Landover, MD 20785-7223
    postmaster@efa.org
    http://www.epilepsyfoundation.org
    Tel: 301-459-3700 800-EFA-1000 (332-1000)
    Fax: 301-577-2684

    Epilepsy Institute
    257 Park Avenue South
    New York, NY 10010
    website@epilepsyinstitute.org
    http://www.epilepsyinstitute.org
    Tel: 212-677-8550
    Fax: 212-677-5825

    Parents Against Childhood Epilepsy (PACE)
    7 East 85th Street
    Suite A3
    New York, NY 10028
    pacenyemail@aol.com
    http://www.paceusa.org
    Tel: 212-665-PACE (7223)
    Fax: 212-327-3075

    Family Caregiver Alliance/ National Center on Caregiving
    180 Montgomery Street
    Suite 1100
    San Francisco, CA 94104
    info@caregiver.org
    http://www.caregiver.org
    Tel: 415-434-3388 800-445-8106
    Fax: 415-434-3508

    National Council on Patient Information and Education
    4915 St. Elmo Avenue
    Suite 505
    Bethesda, MD 20814-6082
    ncpie@ncpie.info
    http://www.talkaboutrx.org
    Tel: 301-656-8565
    Fax: 301-656-4464

    National Family Caregivers Association
    10400 Connecticut Avenue
    Suite 500
    Kensington, MD 20895-3944
    info@thefamilycaregiver.org
    http://www.thefamilycaregiver.org
    Tel: 301-942-6430 800-896-3650
    Fax: 301-942-2302

    National Organization for Rare Disorders (NORD)
    P.O. Box 1968
    (55 Kenosia Avenue)
    Danbury, CT 06813-1968
    orphan@rarediseases.org
    http://www.rarediseases.org
    Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
    Fax: 203-798-2291

    IRSA (International RadioSurgery Association)
    P.O. Box 5186
    Harrisburg, PA 17110
    office@irsa.org
    http://www.irsa.org
    Tel: 717-260-9808
    Fax: 717-260-9809

    Charlie Foundation to Help Cure Pediatric Epilepsy
    1223 Wilshire Blvd.
    Suite #815
    Santa Monica, CA 90403
    ketoman@aol.com
    http://www.charliefoundation.org
    Tel: 800-FOR-KETO (367-5386) 310-395-6751
    Fax: 310-393-1978

    Epilepsy Therapy Development Project
    11921 Freedom Drive
    Suite 730
    Reston, VA 20190
    http://www.epilepsytdp.org
    Tel: 703-437-4250
    Fax: 703-437-4288

    Antiepileptic Drug Pregnancy Registry
    MGH East, CNY-149, 10th Floor
    149 13th Street
    Charlestown, MA 02129-2000
    ebaldwin@partners.org
    http://www.aedpregnancyregistry.org
    Tel: 888-AED-AED4 (233-2334)
    Fax: 617-724-8307
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