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    Macular Degeneration

    Important
    It is possible that the main title of the report Macular Degeneration is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Foveal Dystrophy, Progressive
    • Macula Lutea, degeneration
    • Macular Dystrophy
    • Tapetoretinal Degeneration

    Disorder Subdivisions

    • Behr 1
    • Behr 2
    • Adult Macula Lutea Retinae Degeneration
    • Presenile Macula Lutea Retinae Degeneration
    • Stargardt's Disease (STGD)
    • Juvenile Macular Degeneration
    • Macular Degeneration, Senile
    • Macular Degeneration, Disciform

    General Discussion

    Macular degeneration is a degenerative disease affecting the macula or center of the retina of the eye. It results in progressive loss of central vision. Occurring most often among older people, it is the most common cause of vision loss in people over age 55. It is believed that both genetic and environmental factors influence this disease.

    Resources

    Lighthouse International
    111 E 59th St
    New York, NY 10022-1202
    Tel: (800)829-0500
    Email: info@lighthouse.org
    Internet: http://www.lighthouse.org

    American Foundation for the Blind
    2 Penn Plaza
    Suite 1102
    New York, NY 10121
    Tel: (212)502-7600
    Fax: (888)545-8331
    Tel: (800)232-5463
    TDD: (212)502-7662
    Email: afbinfo@afb.net
    Internet: http://www.afb.org

    American Council of the Blind
    2200 Wilson Boulevard
    Suite 650
    Arlington, VA 22201
    Tel: (202)467-5081
    Fax: (202)465-5085
    Tel: (800)424-8666
    Email: mailman@acb.org
    Internet: http://www.acb.org/

    Association for Macular Diseases, Inc.
    210 E. 64th St.
    8th Floor
    New York, NY 10065
    Tel: (212)605-3719
    Fax: (212)605-3795
    Email: association@retinal-research.org
    Internet: http://www.macula.org/

    NIH/National Eye Institute
    31 Center Dr
    MSC 2510
    Bethesda, MD 20892-2510
    United States
    Tel: (301)496-5248
    Fax: (301)402-1065
    Email: 2020@nei.nih.gov
    Internet: http://www.nei.nih.gov/

    American Health Assistance Foundation
    22512 Gateway Center Drive
    Clarksburg, MD 20871
    USA
    Fax: (301)948-4403
    Tel: (800)437-2423
    Email: info@ahaf.org
    Internet: http://www.ahaf.org

    Eye Cancer Foundation
    115 East 61st Street, Suite 5B
    New York, NY 10021
    Tel: (212)832-7297
    Fax: (212)888-4030
    Email: contactus@eyecarefoundation.org
    Internet: http://www.eyecarefoundation.org

    MD Support - The Eyes of the Macular Degeneration Community
    3600 Blue Ridge Blvd
    Grandview, MO 64030
    USA
    Tel: (816)761-7080
    Fax: (816)761-7080
    Email: director@mdsupport.org
    Internet: http://www.mdsupport.org

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Foundation Fighting Blindness (Canada)
    890 Yonge Street, 12th Floor
    Toronto, Ontario, M4W 3P4
    Canada
    Tel: 4163604200
    Fax: 4163600060
    Tel: 8004613331
    Email: info@ffb.ca
    Internet: http://www.ffb.ca

    Macular Disease Society
    PO Box 1870
    Andover, SP10 9AD
    United Kingdom
    Tel: 01264350551
    Fax: 01264350558
    Email: info@macularsociety.org
    Internet: http://www.macularsociety.org/

    Retina International
    Ausstellungsstrasse 36
    CH-8005
    Z├╝rich,
    Switzerland
    Tel: 410444441077
    Fax: 410444441070
    Email: christina.fasser@retina-international.org
    Internet: http://www.retina-international.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 5/7/2008
    Copyright 1986, 1987, 1990, 1996, 1997, 1998, 1999, 2000, 2004 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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