July 3, 2000 -- The conversation about death loomed, the words waiting to be
spoken. Roberta, a lifelong spiritual seeker, an opera singer, and an
articulate, emotionally aware woman, was dying of cancer at the age of 76.
Would she like to speak with the hospice chaplain? She said yes. The chaplain,
Heather Certik, arrived, but Roberta turned away.
"I had the feeling that Heather's coming over made Mother realize that
maybe her time was winding down," says Michael Messer, Roberta's son, who
moved to San Francisco to care for his mother before she died last fall. "I
don't think she wanted to face that. She wasn't ready to go."
Since Jeanne Erdmann's mother was diagnosed three years ago with dementia, she has taken on the daily responsibilities of bathing and dressing her mom, preparing her meals, making sure she takes her medicine, and managing her finances.
"It wears you down. I think it's the grind of having someone there every day who needs more and more attention," says Erdmann, a medical journalist in Wentzville, Mo. Although she says she's happy to be there for her mom, Erdmann acknowledges the toll caregiving ...
The conversation never happened, with anyone. "I wanted to talk to her
about death, but there was always this feeling of hope that she was going to
make it," says Messer.
Talking about death at the end of life is a difficult, awkward proposition
for both the dying person and for family members. Each may have different
reasons for wanting to stay silent or to talk. Some family members say nothing,
out of fear of saying the wrong thing. Or the dying person says nothing because
of a superstitious belief that to acknowledge death is to hasten it. And family
members often want to shield their grief from the dying person, while the dying
person similarly wants to protect family members.
No wonder one out of four Americans over the age of 45 surveyed in a 1999
telephone poll conducted by the National Hospice Foundation say they would not
bring up issues related to their parent's death -- even if the parent had a
terminal illness and less than six months to live. But those who work in the
field of death and dying emphasize that acknowledging the end of life and
saying goodbye, in whatever form, is an emotional and even a physical balm,
reducing stress and depression.
Breaking the Ice
"Communication is what human beings do, even if it's just holding
someone's hand," says Steven J. Baumrucker, MD, associate editor in chief
of the American Journal of Hospice and Palliative Care. By all means,
Baumrucker urges, speak up, ask what kind of care a dying person would like,
say what you've always wanted to say. Often, there is a need to address
spiritual matters, he says, recalling a man with liver cancer who was in a
frenzy of distress until he was baptized three days before he died. Family
disagreements also can be pressing. "After family members are dead is not a
good time to try to reconcile with them," he says.