The Adult Congenital Heart Association (ACHA) is a nonprofit organization that helps adults with congenital heart defects. Its goal is to improve the health and quality of life for people with congenital heart defects. The ACHA provides electronic and print information for patients and their families. The ACHA promotes an online community and in person events at the local and national level. A directory on the website can help you find a clinic that specializes in care for adults with a congenital heart defect.
American Heart Association (AHA)
7272 Greenville Avenue
Dallas, TX 75231
Visit the American Heart Association (AHA) website for information on
physical activity, diet, and various heart-related conditions. You can search for information on heart disease and stroke, share information with friends and family, and use tools to help you make heart-healthy goals and plans. Contact the AHA to find your
nearest local or state AHA group. The AHA provides brochures and information
about support groups and community programs, including Mended Hearts, a
nationwide organization whose members visit people with heart problems and
provide information and support.
This website is sponsored by the Nemours Foundation. It
has a wide range of information about children's health—from allergies and
diseases to normal growth and development (birth to adolescence). This website
offers separate areas for kids, teens, and parents, each providing
age-appropriate information that the child or parent can understand. You can
sign up to get weekly emails about your area of interest.
March of Dimes
1275 Mamaroneck Avenue
White Plains, NY 10605
The March of Dimes tries to improve the health of babies
by preventing birth defects, premature birth, and early death. March of Dimes
supports research, community services, education, and advocacy to save babies'
lives. The organization's website has information on premature birth, birth
defects, birth defects testing, pregnancy, and prenatal care.