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Immune Deficiency

Online network. Founded 1997. Online self-help group for families afflicted with severe combined immune deficiency (SCID) or who have lost a child to this very rare genetic disorder which results in severe infections. Provides opportunity for families to share information and resources with one another.
Website: http://www.scid.net
Verified: 3/30/2011

National. Founded 1980. Provides support and education for families affected by primary immune deficiency diseases. Newsletter, handbook, videotape and educational materials for public and medical professionals. Networks individuals and family members affected by immune deficiency. Scholarships and fellowship program. Group development guidelines.
Write:
Immune Deficiency Foundation
25 W. Chesapeake Ave., Suite 308
Towson, MD 21204
Voice: 1-800-296-4433 (Mon.-Fri., 9am-5pm EST)
Website: http://www.primaryimmune.org
E-mail: idf@primaryimmune.org
Verified: 1/26/2011

The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.

For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp

If you find information that is not current, please contact American Self-Help Group Clearinghouse at: admin@selfhelpgroups.org

WebMD Medical Reference from the American Self-Help Clearinghouse

Last Updated: May 16, 2012

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.