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    Alveolar Capillary Dysplasia

    Important
    It is possible that the main title of the report Alveolar Capillary Dysplasia is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • ACD

    Disorder Subdivisions

    • None

    General Discussion

    Alveolar capillary dysplasia (ACD) is a rare, likely congenital, disorder of the lungs (pulmonary system) and especially of the blood system serving the lungs. It is a disorder of the newborn. The normal diffusion process of oxygen from the air sacs to the blood in the lungs and, thence, to the heart, fails to develop properly. The disorder is sometimes called misalignment of the pulmonary veins. Rather than misaligned, the pulmonary vein is malpositioned in a site somewhat different from its normal position.

    Infants with the disorder present with the signs of lack of oxygen (hypoxemia) and severely increased pulmonary hypertension.

    Since treatment is seldom, if ever, effective, life expectancy of the infant is very, very, short.

    Resources

    American Lung Association
    1301 Pennsylvania Ave NW
    Suite 800
    Washington, DC 20004
    USA
    Tel: (202)785-3355
    Fax: (202)452-1805
    Tel: (800)586-4872
    Email: info@lungusa.org
    Internet: http://www.lungusa.org

    Alveolar Capillary Dysplasia Association
    c/o Steve and Donna Hanson
    5902 Marcie Court
    Garland, TX 75044-4958
    Email: sdesj@verizon.net
    Internet: http://www.acd-association.com

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    Madisons Foundation
    PO Box 241956
    Los Angeles, CA 90024
    Tel: (310)264-0826
    Fax: (310)264-4766
    Email: getinfo@madisonsfoundation.org
    Internet: http://www.madisonsfoundation.org

    Infants Remembered In Silence, Inc. (IRIS)
    112 Third Street NE
    Faribault, MN 55021
    Tel: (507)334-4748
    Fax: (507)334-4748
    Email: support@irisremembers.com
    Internet: http://www.irisRemembers.com

    Fetal Hope Foundation
    9786 South Holland Street
    Littleton, CO 80127
    USA
    Tel: (303)932-0553
    Tel: (877)789-4673
    Email: info@fetalhope.org
    Internet: http://www.fetalhope.org

    Share Pregnancy & Infant Loss Support, Inc.
    402 Jackson Street
    Saint Charles, MO 63301
    Tel: (636)947-6164
    Fax: (636)947-7486
    Tel: (800)821-6819
    Email: info@nationalshare.org
    Internet: http://www.nationalshare.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 10/23/2003
    Copyright 2003 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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