The Alpha-1 Foundation provides resources for people
with alpha-1 antitrypsin deficiency, a condition that is passed on from parents
to their children through genes. The foundation provides information on
standards for diagnosis and treatment, resources and information about alpha-1
antitrypsin deficiency and testing, clinical resource center locations,
research programs, special stories, and education opportunities.
Genetics Home Reference, U.S. National Library of
8600 Rockville Pike
Bethesda, MD 20894
The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause
disease. It also has links to additional resources for people who
have genetic conditions and for their families.