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Alpha-1 Antitrypsin Deficiency Genetic Testing - Other Places To Get Help

Organizations

Alpha-1 Foundation
2937 SW 27th Avenue
Suite 302
Miami, FL  33133
Phone: 1-877-2-CURE-A1 (1-877-228-7321) toll-free
(305) 567-9888
Fax: (305) 567-1317
Email: info@alphaone.org
Web Address: www.alphaone.org
 

The Alpha-1 Foundation provides resources for people with alpha-1 antitrypsin deficiency, a condition that is passed on from parents to their children through genes. The foundation provides information on standards for diagnosis and treatment, resources and information about alpha-1 antitrypsin deficiency and testing, clinical resource center locations, research programs, special stories, and education opportunities.


Genetics Home Reference, U.S. National Library of Medicine
8600 Rockville Pike
Bethesda, MD  20894
Phone: 1-888-FIND-NLM (1-888-346-3656)
Fax: (301) 402-1384
TDD: 1-800-735-2258
Web Address: www.ghr.nlm.nih.gov
 

The Genetics Home Reference provides information on hundreds of genetic conditions. The website has many tools for learning about human genetics and the way genetic changes can cause disease. It also has links to additional resources for people who have genetic conditions and for their families.


National Heart, Lung, and Blood Institute (NHLBI)
P.O. Box 30105
Bethesda, MD  20824-0105
Phone: (301) 592-8573
Fax: (240) 629-3246
TDD: (240) 629-3255
Email: nhlbiinfo@nhlbi.nih.gov
Web Address: www.nhlbi.nih.gov
 

The U.S. National Heart, Lung, and Blood Institute (NHLBI) information center offers information and publications about preventing and treating:


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WebMD Medical Reference from Healthwise

Last Updated: November 29, 2011
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.
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