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Alpha-1 Antitrypsin Deficiency Genetic Testing - Why Would I Not Be Tested?

You may decide not to be tested because:

  • You do not have symptoms of lung disease.
  • No one in your family has AAT deficiency or lung or liver disease.
  • You would be worried if you knew that you might get lung or liver disease some day.
  • You do not smoke and you already are taking good care of yourself. You think there is nothing more you could do to prevent or delay the disease.
  • The test cannot predict whether you will ever have symptoms of this condition.
  • You do not have insurance or your insurance would not pay for the test.
  • You are worried that the test results might cause problems for you at work or make it hard for you to get health insurance. It's important to know that a law in the United States, called the Genetic Information Nondiscrimination Act of 2008 (GINA), protects people who have genetic differences that may affect their health. GINA prevents employers and health insurance companies from using genetic information about people to affect decisions. This law does not cover life insurance, disability insurance, or long-term care insurance.

    This information is produced and provided by the National Cancer Institute (NCI). The information in this topic may have changed since it was written. For the most current information, contact the National Cancer Institute via the Internet web site at http:// cancer .gov or call 1-800-4-CANCER.

    WebMD Medical Reference from Healthwise

    Last Updated: September 09, 2014
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.
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