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Idiopathic Pulmonary Fibrosis
Important
It is possible that the main title of the report Idiopathic Pulmonary Fibrosisis not the name you expected.
Synonyms
- Alveolocapillary block
- Cryptogenic Fibrosing Alveolitis
- Diffuse Fibrosing Alveolitis
- Fibrosing Alveolitis
- Hamman-Rich Syndrome
- Interstitial Diffuse Pulmonary Fibrosis
Disorder Subdivisions
- None
General Discussion
Idiopathic pulmonary fibrosis is an inflammatory lung disorder of unknown origin (idiopathic) characterized by abnormal formation of fibrous tissue (fibrosis) between the tiny air sacs (alveoli) or ducts of the lungs. Coughing and rapid, shallow breathing occur with moderate exercise. The skin may appear slightly bluish (cyanotic) due to lack of circulating oxygen. Complications such as infection, emphysema or heart problems may develop.
Resources
American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe
MI
48021-2227
Tel: (586)776-3900
Fax: (586)776-3903
800: (800)598-4668
aarda@aarda.org
http://www.aarda.org/
American Lung Association
61 Broadway, 6th Floor
New York
NY
10006
USA
Tel: (212)315-8700
Fax: (212)315-8870
800: (800)586-4872
http://www.lungusa.org
NIH/National Heart, Lung and Blood Institute
31 Center Drive MSC 2480
Building 31A Rm 4A16
Bethesda
MD
20892-2480
Tel: (301)592-8573
Fax: (240)629-3246
nhlbiinfo@rover.nhlbi.nih.gov
http://www.nhlbi.nih.gov/
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay
WI
54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
800: (877)336-5333
mums@netnet.net
http://www.netnet.net/mums/
Coalition for Pulmonary Fibrosis
1659 Bramham Lane
Suite 227
San Jose
CA
95118
USA
Tel: (888)222-8541
Fax: (408)266-3289
800: (888)222-8541
info@coalitionforpf.org
http://www.coalitionforpf.org
Pulmonary Fibrosis Foundation
1332 N. Halsted
Suite 201
Chicago
IL
60622
USA
Tel: (312)587-9272
Fax: (312)587-9273
breathe@pulmonaryfibrosis.org
http://www.pulmonaryfibrosis.org
Autoimmune Information Network, Inc
PO Box 4121
Brick
NJ
08723
Tel: (732)664-9259
autoimmunehelp@aol.com
http://www.aininc.org
European Society for Immunodeficiencies (ESID)
c/o Dr. Esther de Vries
Jeroen Bosch Hospital
Dept. Paediatrics
P.O. Box 90153
Hertogenbosch
5200 ME's
Netherlands
Tel: +31 73-6992965
Fax: +31 73-6992948
info@esid.org
http://www.esid.org
AutoImmunity Community
Tel: (919) 552-9057
bandrews@autoimmunitycommunity.org
http://autoimmunitycommunity.org
For a Complete Report:
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 3/16/2007
Copyright 1987, 1989, 1999, 2000, 2004, 2007 National Organization for Rare Disorders, Inc.
WebMD Medical Reference from the National Organization of Rare Disorders
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