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Lung Disease & Respiratory Health Center

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Recurrent Respiratory Papillomatosis

It is possible that the main title of the report Recurrent Respiratory Papillomatosis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.


  • Respiratory Papillomatosis
  • Juvenile Laryngeal Papilloma
  • Laryngeal Papilloma

Disorder Subdivisions

  • Juvenile Respiratory Papillomatosis
  • Adult-Onset Respiratory Papillomatosis

General Discussion

Recurrent Respiratory Papillomatosis is a rare viral disease characterized by multiple benign growths (papillomas) in the middle and lower respiratory tract. Symptoms usually begin with hoarseness and/or a change in voice. The growths may be surgically removed, but frequently recur and may require additional surgery. Affected individuals may experience long periods without recurrence (remission), and/or the disease may disappear completely. Children under five years of age are most commonly affected, although adults represent about one-third of all documented cases. People with Recurrent Respiratory Papillomatosis may have difficulty breathing (dyspnea) and/or experience other life-threatening complications if the papillomas block the airway.


Recurrent Respiratory Papillomatosis Foundation
P.O. Box 6643
Lawrenceville, NJ 08648
Tel: (609)530-1443
Fax: (609)530-1912
Email: or

NIH/National Heart, Lung and Blood Institute
P.O. Box 30105
Bethesda, MD 20892-0105
Tel: (301)592-8573
Fax: (301)251-1223

NIH/National Institute of Allergy and Infectious Diseases
Office of Communications and Government Relations
6610 Rockledge Drive, MSC 6612
Bethesda, MD 20892-6612
Tel: (301)496-5717
Fax: (301)402-3573
Tel: (866)284-4107
TDD: (800)877-8339

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223

British Paediatric Orphan Lung Disease

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site or email

Last Updated: 5/3/2008
Copyright 1997, 1999, 2002 National Organization for Rare Disorders, Inc.

WebMD Medical Reference from the National Organization for Rare Disorders

Last Updated: May 28, 2015
This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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