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    Recurrent Respiratory Papillomatosis

    Important
    It is possible that the main title of the report Recurrent Respiratory Papillomatosis is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Respiratory Papillomatosis
    • Juvenile Laryngeal Papilloma
    • Laryngeal Papilloma

    Disorder Subdivisions

    • Juvenile Respiratory Papillomatosis
    • Adult-Onset Respiratory Papillomatosis

    General Discussion

    Recurrent Respiratory Papillomatosis is a rare viral disease characterized by multiple benign growths (papillomas) in the middle and lower respiratory tract. Symptoms usually begin with hoarseness and/or a change in voice. The growths may be surgically removed, but frequently recur and may require additional surgery. Affected individuals may experience long periods without recurrence (remission), and/or the disease may disappear completely. Children under five years of age are most commonly affected, although adults represent about one-third of all documented cases. People with Recurrent Respiratory Papillomatosis may have difficulty breathing (dyspnea) and/or experience other life-threatening complications if the papillomas block the airway.

    Resources

    Recurrent Respiratory Papillomatosis Foundation
    P.O. Box 6643
    Lawrenceville, NJ 08648
    Tel: (609)530-1443
    Fax: (609)530-1912
    Email: bills@rrpf.org or marlenelin@aol.com
    Internet: http://www.rrpf.org

    NIH/National Heart, Lung and Blood Institute
    P.O. Box 30105
    Bethesda, MD 20892-0105
    Tel: (301)592-8573
    Fax: (301)251-1223
    Email: nhlbiinfo@rover.nhlbi.nih.gov
    Internet: http://www.nhlbi.nih.gov/

    NIH/National Institute of Allergy and Infectious Diseases
    Office of Communications and Government Relations
    6610 Rockledge Drive, MSC 6612
    Bethesda, MD 20892-6612
    Tel: (301)496-5717
    Fax: (301)402-3573
    Tel: (866)284-4107
    TDD: (800)877-8339
    Email: ocpostoffice@niaid.nih.gov
    Internet: http://www.niaid.nih.gov/

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    British Paediatric Orphan Lung Disease
    Email: admin@bpold.co.uk
    Internet: http://www.bpold.co.uk

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 5/3/2008
    Copyright 1997, 1999, 2002 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

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