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Tips and resources for managing lupus, fatigue, and memory problems.

 
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WebMD Expert Discussion: Tips for Taking Care of Yourself

"If I just knew then what I know now…"

How many times have you thought that, or heard someone else say it? In the WebMD Lupus Community, lupus activist and patient Christine Miserandino tells people who are recently diagnosed with lupus some of the things she wishes she had known when she was first diagnosed. In this discussion, she offers five more tips about living with lupus:

  • Give yourself time to adjust. You may need to grieve or be sad. You may need to make small changes to help you live well with lupus. Take baby steps and listen to your body along the way.   
  • Reach out to others with lupus. It may sound funny to "network" for lupus, but connecting with others is a good way to feel less isolated, and learn from people who've had lupus for years. Going to meetings of your local lupus organization or joining WebMD's message boards are two ways to meet other patients online or in person. Remember, Miserandino says, you're not alone.
  • Take care of your whole self. It's common when you are diagnosed with a medical condition to focus your health care efforts on that, Miserandino says. But it's important not to neglect the rest of your body. Continue making your regular ob-gyn, dental, and eye care appointments. Eat right, take your medicine regularly, and get plenty of sleep.
  • Relax. Keep reading, keep learning, and stay positive. Attitude can make a difference in your care and outlook on life with lupus, Miserandino says.
  • Learn to laugh. There is humor even in lupus. If you can laugh sometimes at "lupus fog" and other aspects of the disease, your life -- and the lives of those around you -- will be better. There are definitely hard times with lupus, but "lupus laughs" can make them easier.

What do you wish you had known when you were diagnosed with lupus?

Discussion led by Christine Miserandino Guest Expert
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Guest Expert What is a guest expert?

Christine Miserandino is a lupus advocate who writes, blogs, and speaks about living with lupus.

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