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4. Prioritize Activities When Living With Lupus continued...

When planning your schedule, do the things that are most strenuous when you feel your best. And try to break up bigger projects into smaller tasks. But try to be flexible. If you don’t have enough energy one day, don’t force yourself to do everything on your list. Reschedule those tasks instead.

“Every morning, I think about my day and prioritize the most important things I need to do,” says Utterback. “Then I decide what I can realistically handle. Usually it’s just three or four tasks. But I do what I can each day and try not to get upset with myself if I can’t get everything done.”

5. Keep a Diary to Track Lupus Fatigue and Learn to Say No

“One of the most difficult things for people with lupus is learning to say no,” says Jolly. But if you want to have energy for the activities that are most important to you, then it’s a must. Focus on listening to your body and saying no to activities you know will leave you exhausted. Do what you need to do for yourself.

Keeping a diary is a good way to track how you feel. “A diary can be a great tool to help you learn what types of activities make you feel good and what makes you feel lousy,” says Jolly. “It can really help some people connect the dots.”

Stress can also add to fatigue, so try to avoid activities you know will increase your stress level. Instead, try to build relaxing activities into your day.

“Having lupus forces you to look at your life differently, but it doesn’t have to be negative,” says Utterback. “Lupus has actually given me a lot of gifts, such as teaching me to slow down and learning how to put myself first.”

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