I had always been an athletic, healthy person, but in my late 30s my body
started sending signals that something was wrong. I was tired all the time. I
had no energy. I even started losing my hair.
When I went to my doctor, the staff ran blood tests, but nothing ever
pointed to a specific diagnosis. I lost weight. I couldn't keep food
down. I developed a butterfly-shaped rash on my face. I saw other doctors; they
thought it was all in my head, and, for a time, they didn't believe I was
Lupus is a difficult disease to diagnose because its symptoms can be vague. And unlike some other diseases, it cannot be diagnosed with a single lab test. However, when certain clinical criteria are met, lab tests can help confirm a diagnosis of lupus. Blood work and other tests can also help monitor the disease and show the effects of treatment.
WebMD takes a look at the uses and limitations of the tests that are commonly used to diagnose and monitor lupus.
It was 1992 and the Internet was in its infancy, so I went to the library
instead. I was very active in trying to figure out the problem, very vocal, and
very angry -- whatever was wrong was interfering with my life. I was 39 years
old, I had a 3-year-old son, a husband, a home, and a full-time job as a nurse,
and I had doctors telling me they didn't know why I was ill.
It took two years and four hospitalizations before my doctors figured out
that I had lupus: a chronic autoimmune
disease that causes inflammation, then swelling and pain (episodes are called
"flares"), and eventually tissue damage throughout the body. I was
relieved -- but also scared -- to finally know what was wrong.
You don't take a water pistol to a gunfight, so once diagnosed, I began
seeing a specialist, a rheumatologist who prescribed some pretty powerful
After my symptoms were under control, we backed down on the medication. I
also made some major life changes: I started exercising again, ate more healthy
foods, and tapped into my network of friends for support. (My husband and I
decided to part, as well.)
Now when I have a flare, I bounce back so fast. I discovered that exercise
-- rowing especially -- is an important ingredient in keeping me healthy.
There's just something about being in a boat and going out early in the
At first my rheumatologist wasn't too happy I was doing it. He thought
rowing would be too much stress on my system, so I
decided to prove him wrong.
Today, I do up to 15,000 meters -- between eight and nine miles -- in a row.
My doctor changed his mind; now he encourages his other patients to
Rowing gives me self-worth. I feel I have some control over my disease and
my life, which is very important for fighting lupus. I get such a positive
feeling, and even on days when I'm tired and think I can't even pull on an oar,
I'll go out and do it, and the satisfaction is wonderful.