Living with Lupus
may feel sad or depressed at times in your struggle to control lupus or because
of the medications you take. Good communication with your doctor and health
care team, as well as with your family and friends, is important in helping you
cope with these feelings.
Concern for the future:
Because the future and course of your disease are unknown, planning
for your job, your family, and life in general can be difficult at
Like you, your family can be overwhelmed about your diagnosis and may
have a difficult time understanding and adapting to your disease. They may feel
confused, helpless, and afraid. Because of your physical limitations,
traditional roles and responsibilities within the family may need to change. It
is important that everyone talk openly and honestly with each other. It is also
important that your family learns about your disease so they can better
understand your physical and emotional condition and the changes in your family
that may result.
Caring for Yourself
Learn as much about lupus as possible.
Understand that you will experience a variety of emotions,
particularly when you are first diagnosed and adjusting to the fact that you
Adopt a positive attitude.
Evaluate your personal strengths and resources, such as
family, friends, coworkers, and community ties.
Determine what your needs are, then make a plan to address
Don't be afraid to set goals for yourself, but be
Learn how to manage the physical aspects of your disease and
the effects they have on other areas of your life.
Learn to deal with stressful situations, because stress and
anxiety can make your lupus symptoms worse.
Learn to talk with your health care team, family, friends,
and coworkers about lupus and the effect it has on your life.
Don't be afraid to seek help for yourself or your
well with lupus is possible. It is important that you take control of your
illness and not allow it to take control of you. Adopting a positive attitude
and striving to be happy can make a big difference in the quality of your life
and that of your family and friends.