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Lupus Health Center

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Living with Lupus

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Depression: You may feel sad or depressed at times in your struggle to control lupus or because of the medications you take. Good communication with your doctor and health care team, as well as with your family and friends, is important in helping you cope with these feelings.

Concern for the future: Because the future and course of your disease are unknown, planning for your job, your family, and life in general can be difficult at times.

Family concerns: Like you, your family can be overwhelmed about your diagnosis and may have a difficult time understanding and adapting to your disease. They may feel confused, helpless, and afraid. Because of your physical limitations, traditional roles and responsibilities within the family may need to change. It is important that everyone talk openly and honestly with each other. It is also important that your family learns about your disease so they can better understand your physical and emotional condition and the changes in your family that may result.

Caring for Yourself

  • Learn as much about lupus as possible.
  • Understand that you will experience a variety of emotions, particularly when you are first diagnosed and adjusting to the fact that you have lupus.
  • Adopt a positive attitude.
  • Evaluate your personal strengths and resources, such as family, friends, coworkers, and community ties.
  • Determine what your needs are, then make a plan to address them.
  • Don't be afraid to set goals for yourself, but be flexible.
  • Learn how to manage the physical aspects of your disease and the effects they have on other areas of your life.
  • Learn to deal with stressful situations, because stress and anxiety can make your lupus symptoms worse.
  • Learn to talk with your health care team, family, friends, and coworkers about lupus and the effect it has on your life.
  • Don't be afraid to seek help for yourself or your family.

Remember: Living well with lupus is possible. It is important that you take control of your illness and not allow it to take control of you. Adopting a positive attitude and striving to be happy can make a big difference in the quality of your life and that of your family and friends.

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WebMD Public Information from the U.S. National Institutes of Health

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