The constant pain and fatigue associated with lupus may make it difficult to cope with the physical and emotional aspects of sex. In addition, some medications used to treat lupus can cause problems. Some of these drugs may decrease your sex drive. Other drugs may lessen sexual arousal or make it difficult to achieve an orgasm.
Some people with lupus also have a condition known as Raynaud's phenomenon. Exposure to cold causes spasms in the small blood vessels of the finger and toes. This reduces blood flow and may cause fingers and toes to turn white or blue and numb. During sex, the flow of blood increases to the genital area and decreases to other areas of the body, including the fingers. This can cause the numbness and pain of Raynaud's phenomenon to occur.
I had always been an athletic, healthy person, but in my late 30s my body started sending signals that something was wrong. I was tired all the time. I had no energy. I even started losing my hair.
When I went to my doctor, the staff ran blood tests, but nothing ever pointed to a specific diagnosis. I lost weight. I couldn't keep food down. I developed a butterfly-shaped rash on my face. I saw other doctors; they thought it was all in my head, and, for a time, they didn't believe I was physically...
Your partner may not understand the changes in your desire, the fact that you may feel unattractive, or the physical problems you are experiencing. He or she may think you are no longer attracted to him or her. On the other hand, you may feel your partner is avoiding you, when he or she is trying to be sensitive to your needs and is afraid of hurting you or causing you more pain during sexual contact.
These issues may be hard for you to talk about. However, a mutual willingness to have open and honest discussions with your partner can play an important part in understanding the issues that are affecting your relationship. If the two of you cannot resolve your problems together, seek help from your doctor, nurse, or a counselor experienced in working with people who have lupus.