What to Expect With Primary Progressive MS
Now and Later
At heart and at home, an essential makeover continued...
A new fully accessible ground-floor addition to their home in Virginia will
be an expensive but necessary project. Thanks to John’s efforts, donated
materials from local builders are coming in. And stay tuned: a “home makeover”
television program has even picked up the story.
“He went into ‘rescue mode,” Mimi says, referring to John sending out
hundreds of letters seeking help from friends, family, and businesses. “And for
once I let him,” says Mimi.
As in Mimi’s case, the paradox of having to accept progression while
struggling against it is at the center of life for thousands of people living
with primary progressive MS. Or as Mimi puts it, you have “to stay in the day
and find peace and gratitude with what you’ve got -- because you never know
when you’re going to lose that.”