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What to Expect With Primary Progressive MS

Now and Later

At heart and at home, an essential makeover continued...

A new fully accessible ground-floor addition to their home in Virginia will be an expensive but necessary project. Thanks to John’s efforts, donated materials from local builders are coming in. And stay tuned: a “home makeover” television program has even picked up the story.

“He went into ‘rescue mode,” Mimi says, referring to John sending out hundreds of letters seeking help from friends, family, and businesses. “And for once I let him,” says Mimi.

As in Mimi’s case, the paradox of having to accept progression while struggling against it is at the center of life for thousands of people living with primary progressive MS. Or as Mimi puts it, you have “to stay in the day and find peace and gratitude with what you’ve got -- because you never know when you’re going to lose that.”

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Reviewed on July 31, 2008

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