How Palliative Care Can Help You
Palliative care can help you feel better as a whole person—in your
body, mind, and spirit. It helps you focus on "the big picture" of your life.
Palliative care includes your family and loved ones.
Sometimes talking with someone who is not a friend or family member
can help you see more clearly. This person could be a palliative care provider.
It is important to talk about your goals and wishes sooner rather
than later. That way, you, your loved ones, and your doctors know what you
want. If you choose, you can be
a part of every decision about your care.
Palliative care works best with open communication. Try to focus on
what you can do to improve communication with your palliative care provider. If
you do not understand what is being said, ask questions until you do. You may
want to write down your questions before your appointment or to bring a loved
one to your appointment. Important questions to ask include:
- What is my diagnosis?
- What are my
- What are the side effects of these treatments?
- What do you think will happen if I choose not to treat my
- How long do you think I have to live?
soon do I need to make a decision about which treatment to use (or to not
- How will my illness and care affect my loved ones?
You might talk about many things during a palliative care visit,
Treatment. You get to decide
how well your treatment is working and if you want to continue it. Maybe you
really want to see your grandson graduate, so you decide to continue treatment
even though it makes you feel sick. Or maybe you prefer to stop or limit
treatment because you would rather focus on the quality of your life rather
than the length of your life.
Pain and treatment side effectsPain and treatment side effects. You may think you have to live with side effects or
pain. But a palliative care doctor can often prescribe medicines to help with
these. All types of treatment have pros and cons, but you can work with your
doctor to find the right mix of medicines for you.
Emotional and social challenges. A palliative care team can help you and your loved
ones talk about feelings and solve problems. Palliative care team members may talk to you about
your feelings about living with a serious illness. They may help
you work through stressful family situations. They might even be
able to help you arrange transportation or find resources to help pay for medicines.
Spiritual concernsSpiritual concerns. It can be
scary to think about living the rest of your life with a serious illness. You
may be struggling with questions such as "Did I do something to deserve this
illness?" or "Has my life been meaningful?" or "What is going to happen to me when
I die?" Your palliative care team may include a chaplain or spiritual advisor who can help you talk through these kinds of