How Palliative Care Can Help You
Palliative care can help you feel better as a whole person-in your body, mind, and spirit. It helps you focus on "the big picture" of your life. Palliative care includes your family and loved ones.
Sometimes talking with someone who is not a friend or family member can help you see more clearly. This person could be a palliative care provider.
It is important to talk about your goals and wishes sooner rather than later. That way, you, your loved ones, and your doctors know what you want. If you choose, you can be a part of every decision about your care.
Palliative care works best with open communication. Try to focus on what you can do to improve communication with your palliative care provider. If you do not understand what is being said, ask questions until you do. You may want to write down your questions before your appointment or to bring a loved one to your appointment. Important questions to ask include:
- What is my diagnosis?
- What are my treatment options?
- What are the side effects of these treatments?
- What do you think will happen if I choose not to treat my illness?
- How long do you think I have to live?
- How soon do I need to make a decision about which treatment to use (or to not use)?
- How will my illness and care affect my loved ones?
You might talk about many things during a palliative care visit, including:
Treatment. You get to decide how well your treatment is working and if you want to continue it. Maybe you really want to see your grandson graduate, so you decide to continue treatment even though it makes you feel sick. Or maybe you prefer to stop or limit treatment because you would rather focus on the quality of your life rather than the length of your life.
Pain and treatment side effectsPain and treatment side effects. You may think you have to live with side effects or pain. But a palliative care doctor can often prescribe medicines to help with these. All types of treatment have pros and cons, but you can work with your doctor to find the right mix of medicines for you.