Glycoprotein Storage Disease
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International network. Founded 1999. Provides practical support for families affected by any glycoprotein storage disease. Offers educational resources for medical community. Promotes research to develop treatments. Phone support, literature, family networks, newsletter, advocacy, online message boards, chatrooms, e-mail discussions, information and referrals.
Int'l Advocate for Glycoprotein Storage Disease
16 Woodleigh Place
Ohauiti, Tauranga, New Zealand