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Parkinson's Disease Health Center

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Coping Tips for Caregivers of Those With Parkinson's Disease

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As a caregiver of someone with Parkinson's disease, you have a lot to do:

  • You help maintain the quality of life for your loved one.
  • You educate yourself about symptoms, treatments, and the progression of the disease.
  • You keep track of appointments with the doctor, medication schedules, and exercise.
  • You offer the love and support necessary to meet the challenges of Parkinson's disease.

You are a caregiver. The role you have taken on is not an easy one. The following tips offer some guidance on how you can help your loved one.

Recommended Related to Parkinson's

10 Questions to Ask Your Doctor About Parkinson's Disease

Since you've recently been diagnosed with Parkinson's disease, ask your doctor these questions at your next visit. 1. What stage is my illness in now? 2. How quickly do you think my disease will progress? 3. How will Parkinson's disease affect my work? 4. What physical changes can I expect? Will I be able to keep up the activities, hobbies, and sports I do now? 5. What treatments do you suggest now? Will that change as the disease progresses? 6. What are the side effects of medication?...

Read the 10 Questions to Ask Your Doctor About Parkinson's Disease article > >

  • Take time for yourself. Make sure you have time to relax. If necessary, enlist the help of other family members or even hire someone to assist you in providing care.
  • Learn as much as you can about your loved one's disease. That way you'll understand what changes to expect in your loved one's behavior or symptoms and how you can best help when those changes occur.
  • Let your loved one participate. Don't try to do everything for your loved one. Allow him or her the time to complete daily activities on his or her own, such as dressing.
  • Consult your loved one about his or her family affairs. Although it's not easy to discuss these topics, you should be informed of your loved one's wishes regarding a living will, durable power of attorney, and do-not-resuscitate (DNR) order.
  • Set realistic goals for yourself and your loved one. Don't attempt to do everything. By setting attainable goals, you are setting everyone up for success rather than disappointment.
  • Do not put your life on hold. Continue to meet with friends, participate in hobbies or groups, and maintain a schedule as normal as possible. You will not only feel more energized, you will be less likely to feel resentful.
  • Have someone you can talk to. You are there to listen to and support your loved one, but you also need a support person. Talk openly and honestly with a friend or family member. If that's not possible, join a support group. Understanding that you are not alone and that someone else is in a similar situation helps you to feel nurtured.

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