Although there have been cases of remission without rheumatoid arthritis treatment, these are not common. Most people with rheumatoid arthritis experience some progression of their disease during their lives.
But there are treatments that can help, and each person responds to the disease differently. What can you expect? That depends on many factors.
Sam Williams and his parents knew something was wrong when it hurt for the 8-year-old to grip a baseball bat, but they never considered juvenile arthritis.
It hurt to write, giving Sam a sound excuse for not wanting to do his homework -- or even his work at school. After several weeks, Sam's pain grew worse -- and moved into his knees. He also had pain in his jaw and had trouble walking.
"His brother had to carry him piggyback up the stairs," says Rose Williams, Sam's mother.
After several months,...
How advanced your rheumatoid arthritis is at the time you are diagnosed
Your age at the time you are diagnosed
How "active" your disease is
Each person's rheumatoid arthritis is unique, and the disease affects each person differently. Over the long-term, though, there are a few common patterns.
Long remissions. Remission means near-disappearance of symptoms without an actual cure. About 5% to 10% of people diagnosed with rheumatoid arthritis have a sudden onset of the illness, but then have no symptoms for many years, even decades.
Intermittent symptoms. About 15% of people with rheumatoid arthritis have disease that waxes and wanes slowly. They have periods of low or no symptoms that can last months between flare-ups.
Progressive rheumatoid arthritis. Unfortunately, that leaves the majority of people, who have the most common and serious form of rheumatoid arthritis. Because it's progressive, it requires a long-term treatment plan and a coordinated medical team to manage the treatment and slow or stop progression.
How can you tell which kind of rheumatoid arthritis you have and whether it will progress? There is no easy way, but there are some general signs that suggest you might have the progressive form of rheumatoid arthritis. You might have progressive RA if you:
Have long duration or high intensity of disease activity (flares)
Were diagnosed at a young age, which means the rheumatoid arthritis has more time to become active in your body
Have rheumatoid nodules -- bumps under the skin that most often appear on the elbows
Have active inflammation that shows up in tests of joint fluid or in blood tests
Had a lot of damage already on X-rays when you were diagnosed
What's the most important thing you can do to follow the progression of rheumatoid arthritis? See a rheumatologist. Your doctor will do a complete joint exam, lab tests, and X-rays to see if your disease has progressed.
At later visits, your doctor can recheck your joints, tests, and X-ray films and see if any further progression has occurred. If your rheumatoid arthritis is progressing, there are good treatment options to slow it down.
A "functional questionnaire" may also help you track the progression of your rheumatoid arthritis. The Health Assessment Questionnaire (HAQ) is a commonly used tool to keep track of rheumatoid arthritis progression, and it's available for free on the Internet.
Fill it out, get a copy in your medical record, and recheck it periodically. Your rheumatologist, or another member of your treatment team, will suggest a schedule.
Note any changes in your level of function and discuss them with your treatment team.
Don't overlook the affect your rheumatoid arthritis has on your mental health. If you are having trouble coping, seek help. Psychologists, social workers, and psychiatrists can help you deal with the struggle of living with the long-term uncertainty and limitations of rheumatoid arthritis.
There is good news for people with rheumatoid arthritis. Treatment is improving and, in many cases, can delay progression of this disease. What does this mean for you? Today, patients may have less progression in their lifetimes than patients of the past.
SOURCES: Breedveld, F., Annals of the Rheumatic Diseases, January 2005; vol 64: pp 52-55. Harris, E., Kelley's Textbook of Rheumatology, 7th edition, W.B. Saunders, 2005. Krishnan, E., American Journal of Medicine, Oct. 1 2003; vol 115: pp 371-376. Lee D. The Lancet, Sept. 15, 2001; vol 358: pp 903-911.