Dystrophic Epidermolysis Bullosa
(Dystrophic Epidermolysis Bullosa Research Association) National network. Founded 1980. Support and information for families affected by epidermolysis bullosa. Promotes research, provides education for patients, families and professionals, emergency financial support, emergency wound care supplies, New Family Advocate program, newsletter, biennial national conference, information and referrals.
DEBRA of America
16 E. 41st., 3rd Floor
New York, NY 10017
Voice: 212-868-1573 or 7-866-332-7276
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