Skin Problems & Treatments Health Center

Lichen Sclerosus

Important
It is possible that the main title of the report Lichen Sclerosus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

Csillag's Disease (Sclerosus)
Guttate Morphea (Sclerosus)
Guttate Scleroderma, Lichen Sclerosus Type
Hallopeau I Disease
Lichen Sclerosus et Atrophicus
Von Zambusch Disease
White-Spot Disease

Disorder Subdivisions

None

General Discussion

Lichen sclerosus is a chronic skin disorder that most commonly affects post-menopausal women. However, it is sometimes identified among pre-menopausal women, and, even more rarely, among males. When found in males, the disease is known as balanitis xerotica obliterans.

Lichen sclerosus is characterized by skin changes of the external genitalia (i.e., vulva, head of the penis), although other parts of the body may also be affected. Intense itching often accompanies attacks of lichen sclerosus. The disorder is not contagious nor is it a sexually transmitted disease. In the recent past, a genetic component for lichen sclerosus has been recognized. In addition, many clinical researchers believe that it is a disorder of the immunological system. The understanding of the causes of this disorder is still incomplete. Lichen sclerosus can develop concurrently with other conditions.

Resources

National Vulvodynia Association
P.O. Box 4491
Silver Spring, MD 20914-4491
USA
Tel: 3012990775
Fax: 3012993999
Email: mate@nva.org
Internet: http://www.nva.org

National Women's Health Resource Center
157 Broad Street
Suite 315
Red Bank, NJ 07701
Tel: (732)530-3425
Fax: (732)530-3347
Tel: (877)986-9472
Email: mchin@healthywomen.org
Internet: http://www.healthywomen.org

American Autoimmune Related Diseases Association, Inc.
22100 Gratiot Avenue
Eastpointe, MI 48021-2227
Tel: (586)776-3900
Fax: (586)776-3903
Tel: (800)598-4668
Email: aarda@aarda.org
Internet: http://www.aarda.org/

National Women's Health Network
514 10th Street NW
Suite 400
Washington, D.C. 20004
USA
Tel: 2026287814
Fax: 2023471168
Email: nwhn@nwhn.org
Internet: http://www.womenshealthnetwork.org

NIH/National Arthritis and Musculoskeletal and Skin Diseases Information Clearinghouse
1 AMS Circle
Bethesda, MD 20892-3675
USA
Tel: 3014954484
Fax: 3017186366
Tel: 8772264267
TDD: 3015652966
Email: NIAMSinfo@mail.nih.gov
Internet: http://www.niams.nih.gov

AutoImmunity Community

Tel: (919)-55-2-9057
Email: bandrews@autoimmunitycommunity.org
Internet: http://autoimmunitycommunity.org

For a Complete Report:

This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated: 4/23/2004
Copyright 1986, 1988, 1989, 1996, 2004 National Organization for Rare Disorders, Inc.