Skip to content
    Font Size
    A
    A
    A

    Lichen Sclerosus

    Important
    It is possible that the main title of the report Lichen Sclerosus is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

    Synonyms

    • Csillag's Disease (Sclerosus)
    • Guttate Morphea (Sclerosus)
    • Guttate Scleroderma, Lichen Sclerosus Type
    • Hallopeau I Disease
    • Lichen Sclerosus et Atrophicus
    • Von Zambusch Disease
    • White-Spot Disease

    Disorder Subdivisions

    • None

    General Discussion

    Lichen sclerosus is a chronic skin disorder that most commonly affects post-menopausal women. However, it is sometimes identified among pre-menopausal women, and, even more rarely, among males. When found in males, the disease is known as balanitis xerotica obliterans.

    Lichen sclerosus is characterized by skin changes of the external genitalia (i.e., vulva, head of the penis), although other parts of the body may also be affected. Intense itching often accompanies attacks of lichen sclerosus. The disorder is not contagious nor is it a sexually transmitted disease. In the recent past, a genetic component for lichen sclerosus has been recognized. In addition, many clinical researchers believe that it is a disorder of the immunological system. The understanding of the causes of this disorder is still incomplete. Lichen sclerosus can develop concurrently with other conditions.

    Resources

    National Vulvodynia Association
    P.O. Box 4491
    Silver Spring,, MD 20914-4491
    USA
    Tel: (301)299-0775
    Fax: (301)299-3999
    Email: mate@nva.org
    Internet: http://www.nva.org

    National Women's Health Resource Center
    157 Broad Street,
    Suite 106
    Red Bank, NJ 07701
    Tel: (732)530-3425
    Fax: (732)530-3347
    Tel: (877)986-9472
    Email: gcassidy@healthywomen.org
    Internet: http://www.healthywomen.org

    American Autoimmune Related Diseases Association, Inc.
    22100 Gratiot Ave.
    Eastpointe, MI 48021
    Tel: (586)776-3900
    Fax: (586)776-3903
    Tel: (800)598-4668
    Email: aarda@aarda.org
    Internet: http://www.aarda.org/

    National Women's Health Network
    1413 K Street, NW
    4th Floor
    Washington, DC 20005
    USA
    Tel: (202)682-2640
    Fax: (202)682-2648
    Email: nwhn@nwhn.org
    Internet: http://www.womenshealthnetwork.org

    NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases
    Information Clearinghouse
    One AMS Circle
    Bethesda, MD 20892-3675
    USA
    Tel: (301)495-4484
    Fax: (301)718-6366
    Tel: (877)226-4267
    TDD: (301)565-2966
    Email: NIAMSinfo@mail.nih.gov
    Internet: http://www.niams.nih.gov/

    Genetic and Rare Diseases (GARD) Information Center
    PO Box 8126
    Gaithersburg, MD 20898-8126
    Tel: (301)251-4925
    Fax: (301)251-4911
    Tel: (888)205-2311
    TDD: (888)205-3223
    Internet: http://rarediseases.info.nih.gov/GARD/

    International Scleroderma Network
    7455 France Ave So #266
    Edina, MN 55435-4702
    Tel: (952)583-5735
    Tel: (800)564-7099
    Email: isn@sclero.org
    Internet: http://www.sclero.org

    AutoImmunity Community
    Email: moderator@autoimmunitycommunity.org
    Internet: http://www.autoimmunitycommunity.org

    For a Complete Report:

    This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

    The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

    It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

    This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

    For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

    Last Updated: 4/23/2004
    Copyright 1986, 1988, 1989, 1996, 2004 National Organization for Rare Disorders, Inc.

    WebMD Medical Reference from the National Organization for Rare Disorders

    Last Updated: May 28, 2015
    This information is not intended to replace the advice of a doctor. Healthwise disclaims any liability for the decisions you make based on this information.

    Today on WebMD

    chafing
    Pictures and symptoms of the red, scaly rash.
    woman with dyed dark hair
    What it says about your health.
     
    woman with cleaning products
    Top causes of the itch that rashes.
    atopic dermatitus
    Identify and treat common skin problems.
     
    itchy skin
    Article
    shingles rash on skin
    Article
     
    woman with skin tag
    Quiz
    Woman washing face
    Video
     
    woman washing her hair in sink
    Video
    close up of womans bare neck
    Tools
     
    Feet
    Slideshow
    woman with face cream
    Quiz