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Resources and Support for Skin Conditions

This is not a complete listing of resources and support groups and inclusion does not imply endorsement by WebMD. Remember to always follow the advice of your doctor and health care team.

American Cancer Society  
Phone: (800) ACS-2345
The American Cancer Society is a national organization dedicated to cancer education, prevention, and research. Services include patient information, patient advocacy, and community programs.

Basal Cell Carcinoma Nevus Syndrome (BCCNS) Life Support Network  
P.O. Box 321
Burton, Ohio 44021
Phone: (866) 834-1895
The BCCNS Life Support Network is an organization dedicated to serving those with basal cell carcinoma (skin cancer). In addition to information and educational materials, the organization offers counseling, referrals to health care professionals, and networking with other patients and families.

Lupus Foundation of America, Inc.  
2000 L Street, NW, Suite 710
Washington, DC 20036
Phone: (202) 349-1155
The Lupus Foundation of America supports research and public education of lupus, and also offers support to lupus patients and their families. Its web site offers patient education, publications, and research updates.

The American Academy of Dermatology  
P.O. Box 4014
Schaumburg, IL 60168-4014
Phone: (866) 503-SKIN (7546)

The American Academy of Dermatology is a professional organization of dermatologists. The web site offers patient information on dermatology topics, publications, and assistance in finding a dermatologist.

The National Psoriasis Foundation  
6600 SW 92nd Ave., Suite 300
Portland, OR 97223-7195
Phone: (800) 723-9166, ext. 480
The National Psoriasis Foundation advocates for patients with psoriasis via education and research support. The web site includes information about treatment, research updates, and a physician directory.

The National Rosacea Society  
196 James Street
Barrington, IL 60010
Phone: (888) NO-BLUSH
The National Rosacea Society provides awareness, public health information, newsletters, physician information, and research support.

The Scleroderma Research Foundation  
220 Montgomery Street, Suite 1411
San Francisco, CA 94104
Phone: (800) 441-CURE (2873)

The Scleroderma Research Foundation supports research and public education. The web site includes a newsletter, patient information, and information on clinical trials into scleroderma.

The Skin Cancer Foundation  
149 Madison Avenue
Suite 901
New York, NY 10016 

Phone: (212) 725-5176

The Skin Cancer Foundation's mission is to provide information about skin cancer, (including public and physician education campaigns), encourage detection, and sponsor research. The web site offers information on skin cancer, sun safety, and examining the skin for cancer.

The Sturge-Weber Foundation  
P.O. Box 418
Mount Freedom, New Jersey 07970
Phone: (973) 895-4445
The Sturge-Weber Foundation (SWF) is an organization for people who have port wine stains, Sturge-Weber Syndrome, and Klippel-Trenaunay Syndrome (red-purple birthmarks involving blood vessels). For patients and families, the SWF offers information and educational materials (including a newsletter, textbooks, and coloring books). The SWF also sponsors research into these conditions.

 

 

WebMD Medical Reference

Reviewed by Stephanie S. Gardner, MD on November 22, 2015

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