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Narcolepsy
Important
It is possible that the main title of the report Narcolepsyis not the name you expected.
Synonyms
- Gelineau's Syndrome
- Paroxysmal Sleep
- Sleep Epilepsy
- Narcoleptic syndrome
Disorder Subdivisions
- None
General Discussion
Narcolepsy is a rare disorder characterized by chronic, excessive attacks of drowsiness during the day, sudden extreme muscle weakness (cataplexy), hallucinations, paralysis while sleeping, and disrupted sleep during the night. Attacks of drowsiness may persist only a few minutes or last for hours, and may vary in frequency from a few incidents to several during a single day. Although the exact cause of narcolepsy is not known, many researchers suspect that genetic factors play a role in the development of the disorder.
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Resources
National Sleep Foundation
1522 K Street
Suite 500
Washington
D.C.
20005
Tel: (202)347-3471
Fax: (202)347-3472
nsf@sleepfoundation.org
http://www.sleepfoundation.org
Narcolepsy Network, Inc.
79 Main Street
North Kingstown
RI
02852
USA
Tel: (401)667-2523
Fax: (401)633-6567
800: (888)292-6522
narnet@narcolepsynetwork.org
http://www.narcolepsynetwork.org
American Sleep Disorders Association
1610 14th Street NW
Suite 300
Rochester
MN
55901
Tel: (507)287-6006
Fax: (507)287-6008
asda@millcomm.comCenter for Research in Sleep Disorders
1275 East Kemper Rd.
Cincinnati
OH
45246
Tel: (513)671-3101
Fax: (513)671-4159
TDD: (311)111-6111
ggaz@tristatesleep.comNarcolepsy Institute
Montefiore Medical Center
111 East 210th Street
Bronx
NY
10467
Tel: (718)920-6799
Fax: (718)654-9580
MGoswami@NarcolepsyInstitute.org
http://www.narcolepsyinstitute.org
National Institute of Neurological Disorders and Stroke (NINDS)
31 Center Drive
8A07
Bethesda
MD
20892-2540
Tel: (301)496-5751
Fax: (301)402-2186
800: (800)352-9424
braininfo@ninds.nih.gov
http://www.ninds.nih.gov/
Medic Alert Foundation International
2323 Colorado Avenue
Turlock
CA
95382
USA
Tel: (209)669-2401
Fax: (209)669-2456
800: (800)432-5378
Inquiries@medicalert.org
http://www.medicalert.org
Center for Narcolepsy Research
College of Nursing (M/C 802)
The University of Illinois at Chicago
845 South Damen Avenue
Room 215
Chicago
IL
60612-7350
Tel: (312)996-5176
Fax: (312)996-7008
narcolep@listserve.uic.edu
http://www.uic.edu/depts/cnr/cnrright.htm
MUMS (Mothers United for Moral Support, Inc) National Parent-to-Parent Network
150 Custer Court
Green Bay
WI
54301-1243
USA
Tel: (920)336-5333
Fax: (920)339-0995
800: (877)336-5333
mums@netnet.net
http://www.netnet.net/mums/
For a Complete Report:
This is an abstract of a report from the National Organization for Rare Disorders, Inc. ® (NORD). A copy of the complete report can be obtained for a small fee by visiting the NORD website. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational treatments (if available), and references from medical literature. For a full-text version of this topic, see http://www.rarediseases.org/search/rdblist.html
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org
Last Updated: 5/29/2008
Copyright 1986, 1988, 1990, 1993, 1994, 1996, 1997, 1998, 1999, 2000, 2002, 2003, 2005 National Organization for Rare Disorders, Inc.
WebMD Medical Reference from the National Organization of Rare Disorders
