International. 8 affiliated groups. Founded 1984. Forum where persons with incontinence, their families and friends can express concerns and receive assistance. Disseminates information on bladder control. Phone support. Assistance in starting groups.
407 Strawberry Hill Ave.
Stamford, CT 06902
National. Founded 1983. Support and advocacy for people suffering from incontinence. Newsletter, books, video, fact sheets, educational program called, 'I Will Manage'. and international conference series entitled Innovating for Continence.
Simon Foundation for Continence
P.O. Box 835
Wilmette, IL 60091
E-mail: email@example.com or firstname.lastname@example.org
International network. Founded 1988. Support and information for the families with children born with anorectal, colorectal or urogenital disorder and any of the associated diseases. Disorders include bladder exstrophy, imperforate anus, VATER/VACTERL association, anal stenosis, cloacal exstrophy and Hirschsprung's disease. Maintains a database for personal networking. Quarterly magazine, online discussion group, weekly chat for members, phone support and literature. Dues $30/year - can be waived upon request.
2312 Savoy St.
Hoover, AL 35226
(BILINGUAL) National. Dedicated to improving the quality of life of people with incontinence by providing support and information about the causes, prevention, diagnosis, treatments and management alternatives for incontinence. Offers telephone support network, moderated message board and listserv. Newsletter, literature (some available in Spanish), regional conferences, information and referrals.
P.O. Box 1019
Charleston, SC 29402
The above information was "verified" as correct on the date at the end of each entry. Since American Self-Help Group Clearinghouse's database is extensive but staffing is limited and information for these organizations can change, it is not possible to keep every entry in American Self-Help Group Clearinghouse database completely current and accurate. Please check with the organizations listed for the most current information.
For additional information on self-help groups, please visit the American Self-Help Group Clearinghouse web site at http://www.mentalhelp.net/selfhelp
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