Interstitial Cystitis / Painful Bladder Syndrome
The materials listed below may be found in medical libraries, in many college and university libraries, through interlibrary loan in most public libraries, and at bookstores. Items are listed for information only; inclusion does not imply endorsement by NIH.
Articles and Book Chapters
Keay SK, Warren JW. Is interstitial cystitis an infectious disease? International Journal of Antimicrobial Agents, 2002, 19(6):480-3.
The Interstitial Cystitis Clinical Trials Group. A randomized controlled trial of intravesical bacillus Calmette-Guerin for treatment of refractory interstitial cystitis. Journal of Urology, 2005, 173(4):1186-91.
The Interstitial Cystitis Clinical Trials Group. A pilot clinical trial of oral pentosan polysulfate and oral hydroxyzine in patients with interstitial cystitis. Journal of Urology, 2003, 170(3):810-15.
Books and Booklets
Moldwin RM. Interstitial cystitis survival guide: your guide to the latest treatment options and coping strategies. Oakland, CA: New Harbinger Publications, Inc.; 2000. (Available by calling 1-800-HELP-ICA.)
Sandler GG, Sandler A. Patient to patient: managing interstitial cystitis and overlapping conditions. New Orleans, LA: Bon Ange LLC; 2000.
Sant G, ed. Interstitial cystitis. Philadelphia: Lippincott-Raven; 1997.
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For More Information
American Foundation for Urologic Disease
1000 Corporate Boulevard
Linthicum, MD 21090
Phone: 1-800-828-7866 or 410-689-3990
American Pain Society
4700 West Lake Avenue
Glenview, IL 60025
American Urogynecologic Society
2025 M Street NW., Suite 800
Washington, DC 20036
International Association for the Study of Pain
909 Northeast 43rd Street, Suite 306
Seattle, WA 98105-6020
Interstitial Cystitis Association of America
110 North Washington Street, Suite 340
Rockville, MD 20850
Phone: 1-800-HELP-ICA (435-7422) or 301-610-5300
National Chronic Pain Outreach Association
7979 Old Georgetown Road, Suite 100
Bethesda, MD 20814-2429
National Kidney Foundation
30 East 33rd Street
New York, NY 10016
Phone: 1-800-622-9010 or 212-889-2210
National Organization of Social Security Claimants' Representatives
6 Prospect Street
Midland Park, NJ 07432-1691
Social Security Administration
Write or call your local office: look in the telephone book under U.S. Government, Department of Health and Human Services or call 1-800-772-1213, visit www.ssa.gov on the Internet, or write to Social Security
Office of Public Inquiries
Windsor Park Building
6401 Security Boulevard
Baltimore, MD 21235-6401
United Ostomy Association
19772 MacArthur Boulevard, Suite 200
Irvine, CA 92612
Phone: 1-800-826-0826 or 949-660-8624