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How can family and friends help you with tuberous sclerosis complex (TSC)?

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Talk with your family and friends about the condition. They'll want to know how they can support you. Ask them for things you need, as they may not know what's most helpful for you.

SOURCES:

Tuberous Sclerosis Alliance: "Signs of TSC," "What Is TSC?" "Lung Involvement," "Brain Involvement," "Kidney Involvement," "Skin Involvement," "Eye Involvement."

Tuberous Sclerosis Association: "An Introduction to Tuberous Sclerosis Complex."

NINDS: "Tuberous Sclerosis Fact Sheet."

NIH Genetics Home Reference: "Tuberous sclerosis complex."

Boston Children's Hospital: "Tuberous Sclerosis (TSC)."

NORD: "Tuberous Sclerosis."

FDA: "Everolimus for Tuberous Sclerosis Complex (TSC)."

Angiogenesis Foundation: "Angiogenesis inhibitor found effective for treating brain tumors in children with genetic disease; accelerated FDA approval follows study results."

Reviewed by Nayana Ambardekar on June 16, 2018

SOURCES:

Tuberous Sclerosis Alliance: "Signs of TSC," "What Is TSC?" "Lung Involvement," "Brain Involvement," "Kidney Involvement," "Skin Involvement," "Eye Involvement."

Tuberous Sclerosis Association: "An Introduction to Tuberous Sclerosis Complex."

NINDS: "Tuberous Sclerosis Fact Sheet."

NIH Genetics Home Reference: "Tuberous sclerosis complex."

Boston Children's Hospital: "Tuberous Sclerosis (TSC)."

NORD: "Tuberous Sclerosis."

FDA: "Everolimus for Tuberous Sclerosis Complex (TSC)."

Angiogenesis Foundation: "Angiogenesis inhibitor found effective for treating brain tumors in children with genetic disease; accelerated FDA approval follows study results."

Reviewed by Nayana Ambardekar on June 16, 2018

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How can joining a support group help with managing tuberous sclerosis complex (TSC)?

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