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How do you take care of yourself or your child with adenosine deaminase severe combined immunodeficiency (ADA-SCID)?

ANSWER

This is a serious genetic disease that happens when your body's defenses stop working. Avoiding infections is crucial. Wash your hands often, stay away from people who are sick, and talk to your doctor before getting any vaccinations. You shouldn't get any vaccines that are made with live viruses. Take care of yourself. Eat right, exercise, and get enough sleep to help your body stay healthy.

SOURCES:

American Society of Gene & Cell Therapy: ''Gene Therapy for Genetic Disorders.''

Baby’s First Test: ''Severe combined immunodeficiency.''

GeneReviews: ''Adenosine Deaminase Deficiency.''

Great Ormond Street Hospital for Children NHS Trust: "Severe combined immunodeficiency (SCID) information."

Nemours Foundation: ''Severe Combined Immunodeficiency.''

Pai, S. , published online July 31, 2014. New England Journal Of Medicine

NIH: ''Adenosine deaminase deficiency.''

Immune Deficiency Foundation: ''About Primary Immunodeficiency'' and ''Severe Combined Immune Deficiency and Combined Immune Deficiency.''

Reviewed by Dan Brennan on October 16, 2018

SOURCES:

American Society of Gene & Cell Therapy: ''Gene Therapy for Genetic Disorders.''

Baby’s First Test: ''Severe combined immunodeficiency.''

GeneReviews: ''Adenosine Deaminase Deficiency.''

Great Ormond Street Hospital for Children NHS Trust: "Severe combined immunodeficiency (SCID) information."

Nemours Foundation: ''Severe Combined Immunodeficiency.''

Pai, S. , published online July 31, 2014. New England Journal Of Medicine

NIH: ''Adenosine deaminase deficiency.''

Immune Deficiency Foundation: ''About Primary Immunodeficiency'' and ''Severe Combined Immune Deficiency and Combined Immune Deficiency.''

Reviewed by Dan Brennan on October 16, 2018

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