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What can you ask your doctor about paroxysmal nocturnal hemoglobinuria (PNH)?

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  • What makes you sure that I have PNH?
  • Do I need any more tests?
  • What is my level of PNH cells?
  • Will I feel differently over time?
  • Are some symptoms more dangerous than others?
  • What can I do to feel better?
  • What are my treatment options?
  • How will they make me feel?
  • How will we know if the treatment is working?
  • Would a bone marrow transplant help me?
  • If so, how do I find a good match for a transplant?
  • Can I take part in a clinical trial?
  • Will I be able to have children?

SOURCES:

Academy of Nutrition and Dietetics: "Healthy Eating for Women."

Aplastic Anemia and MDS International Foundation: "Your Guide to Understanding PNH (Paroxysmal Nocturnal Hemoglobinuria)."

Johns Hopkins Medicine: "Paroxysmal Nocturnal Hemoglobinuria (PNH)."

NIH National Center for Advancing Translational Sciences: "Paroxysmal nocturnal hemoglobinuria," "What Is Aplastic Anemia?"

Parker, C. published online Dec. 1, 2005 Blood, .

Reviewed by Melinda Ratini on April 02, 2019

SOURCES:

Academy of Nutrition and Dietetics: "Healthy Eating for Women."

Aplastic Anemia and MDS International Foundation: "Your Guide to Understanding PNH (Paroxysmal Nocturnal Hemoglobinuria)."

Johns Hopkins Medicine: "Paroxysmal Nocturnal Hemoglobinuria (PNH)."

NIH National Center for Advancing Translational Sciences: "Paroxysmal nocturnal hemoglobinuria," "What Is Aplastic Anemia?"

Parker, C. published online Dec. 1, 2005 Blood, .

Reviewed by Melinda Ratini on April 02, 2019

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