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What do you need to do when your paroxysmal nocturnal hemoglobinuria (PNH) doesn't get better with usual treatments?

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If your PNH doesn't get better with usual treatments, you may want to ask your doctor if you can take part in a clinical trial. These research studies try out new ways to treat PNH, before they’re available to everyone. Ask your doctor what’s involved and what you should consider before you sign up.

SOURCES:

Academy of Nutrition and Dietetics: "Healthy Eating for Women."

Aplastic Anemia and MDS International Foundation: "Your Guide to Understanding PNH (Paroxysmal Nocturnal Hemoglobinuria)."

Johns Hopkins Medicine: "Paroxysmal Nocturnal Hemoglobinuria (PNH)."

NIH National Center for Advancing Translational Sciences: "Paroxysmal nocturnal hemoglobinuria," "What Is Aplastic Anemia?"

Parker, C. published online Dec. 1, 2005 Blood, .

Reviewed by Melinda Ratini on April 02, 2019

SOURCES:

Academy of Nutrition and Dietetics: "Healthy Eating for Women."

Aplastic Anemia and MDS International Foundation: "Your Guide to Understanding PNH (Paroxysmal Nocturnal Hemoglobinuria)."

Johns Hopkins Medicine: "Paroxysmal Nocturnal Hemoglobinuria (PNH)."

NIH National Center for Advancing Translational Sciences: "Paroxysmal nocturnal hemoglobinuria," "What Is Aplastic Anemia?"

Parker, C. published online Dec. 1, 2005 Blood, .

Reviewed by Melinda Ratini on April 02, 2019

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How can paroxysmal nocturnal hemoglobinuria (PNH) affect pregnancy?

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